Eleanor F. Anbinder
A decade ago, breast cancer survivor Ellie Anbinder co-founded the non-profit organization Art beCAUSE, which raises seed money for research that has the potential to reduce the environmental causes of breast cancer. Ellie chairs the foundation, which has already supported such groundbreaking research as a recent study by the Silent Spring Institute of household exposure risks and another researcher’s examination of a common environmental chemical that may accelerate the growth of breast cancer cells.
Ellie became active in the breast cancer movement shortly after her diagnosis of breast cancer, and her commitment has been steadfast ever since. Before co-founding Art beCAUSE, she served on the first board of directors of the Massachusetts Breast Cancer Coalition, actively leading such activities as public relations, fund raising and statewide development. Ellie brings to the cause her professional expertise in sales and marketing as well as her skills in developing networks and customer relationships.
Kenneth C. Anderson, MD
Dr. Kenneth Anderson is a firm believer in medical experts working together to find better treatments for cancer. A world authority in the field of multiple myeloma, Dr. Anderson has led the development of novel agents that are effective in the treatment of this disorder and altered the way the disease is treated. In his effort to accelerate progress in discovering better treatments and potential cures for multiple myeloma, he has built a collaborative clinical and research team that includes investigators at both the Dana Farber Cancer Institute and at the Mass General Cancer Center
Arthur
Arthur, the world‘s favorite aardvark, ranks among the TV Guide’s “50 Greatest Cartoon Characters of All Time.” He ranks among our heroes, too. Arthur stars in the popular PBS animated series that, in a future, two-part episode, will educate children and families about living with cancer. When they learn that lunch lady Mrs. MacGrady has cancer, Arthur and his friends express their fears, confusion and denials, and find ways to help each other and Mrs. MacGrady. This sensitive portrayal along with outreach materials will help millions of children better understand how to cope with cancer in the people they care about.
WGBH Boston developed the educational materials in collaboration with the Lance Armstrong Foundation and the Marjorie E. Korff Parenting at a Challenging Time (PACT) Program at Mass General Cancer Center.
The episode will include a segment filmed at the Mason-Rice Elementary School in Newton. In this episode, beloved principal Mark Springer, who in 2007 was treated for lymphoma at Mass General, talks with students about his and their experiences during his treatment and recovery.
Avon Foundation Comprehensive Breast Evaluation Center
The Avon Foundation Comprehensive Breast Evaluation Center at Mass General offers the most advanced breast imaging, surgical screening and pathology services available. Yet many patients arrive for a biopsy or lumpectomy full of apprehension, fearing a cancer diagnosis or already coping with one.
Helping to ease the anxiety and reassure patients are Deanna Fiantago, Lesley Gonzalez, Erin Olsen, Colleen Spinos and Rosanne Transfaglia, the center´s radiology technical assistants. They are warm and welcoming to patients, their families and friends, and with skill and care they transport the patients between the center and the pre-operative areas.
At the center, a patient may undergo a mammogram and an insertion of a fine wire needle into the breast, a step that requires the patient to remain still for up to 45 minutes. Many may then face a long, stressful wait for a surgical procedure later that same day.
As the technical assistants transfer each patient between imaging and day surgery, their respectful and compassionate treatment empowers patients. Their kindness and competence relieve patients´ anxiety and encourage them to have a positive attitude toward treatment.
Harriet Berman, PhD
Harriet Berman, PhD, was executive vice president for clinical programs at the Wellness Community — Greater Boston, which for more than 15 years provided free support and educational programs to people with cancer and their loved ones. Its professionally led support groups, nutrition and exercise workshops and mind/body classes helped participants meet the day-to-day challenges of living with cancer.
Harriet´s own experience as a young mother diagnosed with breast cancer has influenced her work, which empowers individuals and families to cope with illness and grief and renew their lives. A licensed clinical psychologist who has practiced for more than three decades, Harriet is also a professor at the Massachusetts School of Professional Psychology.
Although the Wellness Community closed in 2009, Harriet and some of her colleagues continue to counsel and educate cancer patients and their families at no charge through the nonprofit organization Facing Cancer Together.
Katie Binda, MSW, LICSW
Oncology social worker Katie Binda brings compassion, imagination and initiative to patient care. A decade ago, she founded The HOPES Program at the Mass General Cancer Center. Under Katie´s leadership, the program has become a rich array of education, support and wellness activities that help patients and their families care for mind, body and spirit as they live with cancer.
As director of The HOPES Program, Katie is a ceaseless innovator. She introduced massage and acupuncture to complement traditional treatments years before such services became a mainstream component of cancer care. And Katie inspires her colleagues to join her in creating and leading workshops that help patients manage side effects and reduce anxiety so they focus their energy on healing.
Katie also seizes every opportunity to interact with patients one-on-one. En route to a meeting, she noticed an agitated patient. Finding out that he was hungry, Katie promptly got the man lunch and ensured his comfort before continuing on her way.
Kathleen Blais, RN, BS, OCN
Some cancer patients say their cancer was a blessing. Not me. However, the Mass General infusion nurse who accompanied me on my journey with stage IV breast cancer has been a blessing. Kathy Blais emanates quiet compassion, and she is as warm and positive with my loved ones as she is with me, educating and reassuring us every step of the way.
Kathy combines vigilant care with a sense of fun. When we met for my first infusion, she determined that my port-a-catheter had been implanted just two days before. She calmly stopped and verified that sufficient time had elapsed before the infusion.
I took a stuffed animal, “Lester, the Unchicken Chicken,” to every infusion. One day I left Lester behind. Fearing its loss, Kathy, who was leaving for vacation, took Lester along. She brought back a photo album showing Lester by a pool, wearing sunglasses and riding in a Jeep.
Twelve months after my diagnosis, I had an emergency hospitalization. After her long day of work, Kathy visited me, her radiant smile again reassuring me.
Kristen M. Bodnaruk, RN, BS, OCN
In 1999, my wife Susan was diagnosed with myelodysplastic syndrome that subsequently evolved into acute myelogenous leukemia. After a bone marrow transplant in 2000, she underwent three more transplants as an outpatient before losing her battle with this disease in November 2006.
Throughout these seven years, Kristen Bodnaruk was my wife´s primary care nurse. Kristen ensured that Susan received the best possible care in every part of her treatment, which included undergoing the first stem cell transplant performed at Mass General as an outpatient procedure. During each of our multiple weekly visits to the Infusion Unit, Kristen helped us quell our fears and readily answered all of our questions — or made sure we received the information we sought before we left for the day. In every way, Kristen treated us as well as her other patients with a high level of professionalism coupled with unsurpassed compassion and tenderness.
Rachel Bolton, RN, CPON
Rachel Bolton is a smart, loving and nurturing nurse whose professionalism, kindness and sense of humor make her patients fall in love with her. She is doing exactly what she was put on this earth to do: care for children.
Rachel´s infectious smile put our sixyear- old, Samson, at ease and she quickly engaged him in “helping her” with her job. As Rachel predicted, within a week, Samson was looking forward to his daily proton treatment.
Rachel´s understanding and honesty helped us, as his parents, maneuver an incredibly difficult situation by preparing us for possible side effects and suggesting remedies. If treatment was delayed for any reason, she called to let us know so that we did not have to spend extra time in the waiting room. She made all of our other doctors´ appointments for us so that we could focus on caring for our son.
Rachel was more than our son´s nurse. She was our advocate and friend.
Ieva Broks, BSN, RN, OCN
Ieva Broks has been an oncology nurse at Mass General for more than 35 years. Her work is her vocation. She is a natural caregiver who is gifted with great empathy as well as profound technical expertise. Ieva takes time to develop a rapport with each patient and truly gives each person comfort, encouragement and support. From the start of their chemotherapy treatments and throughout the process, patients are comfortable and at ease with Ieva. Many have commented, “While I’m in Ieva’s care, I feel that I’m her only patient.”
Her kindness, dedication and skill also reassure the loved ones who accompany patients to their chemotherapy treatments.
Ieva’s kindness extends to her colleagues. They find that Ieva is never too busy to help others do their best. She readily answers questions and offers guidance on how to meet a patient’s need in a manner that instills confidence. In turn, her fellow staff members admire Ieva as an exemplary role model who always puts people first.
Sumner and Emeline Brown
Sumner Brown is a long-time friend and supporter of Massachusetts General Hospital and has committed significant philanthropy to the hospital. His wife Emeline was a dedicated nurse at Mass General for 18 years. Emmie lost her battle with lung cancer in December 2006, and since then, her husband has generously supported the Mass General Cancer Center in her memory. While providing vital unrestricted funds to the Cancer Center, he has also funded the Sumner W. Brown Skilled Nursing Laboratory and contributed to a nursing scholarship. By advancing care and research that were important to Emmie, Sumner continues her life-sustaining work on behalf of countless other patients.
Carolyn Frye Halloran Brain Tumor Therapy Program
Mr. and Mrs. Clayton W. Frye Jr. established the Carolyn Frye-Halloran Brain Tumor Therapy Program in 2000, in memory of their daughter, Carolyn, who that year lost her four-year battle with brain cancer. Until her death, Carolyn had fought her cancer with courage, dignity and strength, while remaining a devoted and loving wife, mother, daughter, sister and friend. The memorial gifts from the Frye family inspired an outpouring of philanthropic support in Carolyn’s name — all dedicated to this program, which advances brain tumor research at the Mass General.
Despite great strides in cancer diagnosis and treatment, brain tumors continue to challenge researchers seeking tools for early detection and cure. The program that honors Carolyn has provided bedrock support to the Mass General team investigating translational approaches to brain tumor diagnosis and therapy. Thanks to its funding, the team has applied promising laboratory discoveries to patient care through clinical trials, trained a new generation of investigators, and conducted seminal discussions of novel therapies through the annual Carolyn Frye-Halloran Symposium.
Cheryl Chagnon
After a successful fight against lymphoma, Cheryl Chagnon established the Cheryl Chagnon Lymphoma Research Fund in 2002. Cheryl fundraises tirelessly in support of blood cancer research directed by David Scadden, MD, at the MGH Center for Regenerative Medicine.
Over the past seven years, Cheryl, her family and friends have raised more than $215,000 through an annual Dinner for a Cure that draws hundreds of supporters; and participation in the seven-mile Falmouth Road Race, for which Cheryl recruits, trains and leads a pack of sponsored runners.
The majority of funds raised have been used to purchase equipment for the Scadden laboratory. This equipment allows Mass General scientists to conduct their research at a faster pace, speeding the delivery of laboratory results to clinical treatments for blood cancer patients.
While fundraising and advocating on behalf of blood cancer research, Cheryl cares for her family, practices occupational therapy, works toward her masters’ degree and — after nine years in remission — fights a second battle against lymphoma. Incredibly warm and energetic despite the obstacles she faces, Cheryl is making a real difference for blood cancer patients. What’s more, Cheryl inspires her community to join her passionate fight for a cure.
Charley Davidson Leukemia Fund
In 1981, Bert and Toby Davidson established the Charley Davidson Leukemia Fund in memory of their son, Charley. That year, Charley, still a toddler, succumbed to leukemia. Each year since, Bert and Toby have reached out to Charley’s family and friends to raise money for the fund, which advances the fight against childhood cancer. Its mission is to improve the quality of life and the chance of full recovery for young patients everywhere.
Administered by dedicated volunteers, Charley’s fund has raised more than one million dollars on behalf of MassGeneral Hospital for Children’s Pediatric Oncology Unit. Seventy percent of its expenditures support research in childhood cancer and 20 percent provide amenities for pediatric cancer patients and their families, from art and music therapy to a DVD library that creates a more pleasant treatment environment. The remaining 10 percent is invested in a perpetual endowment to preserve funding for future needs. The Davidsons are true champions whose steadfast commitment over three decades has contributed to the dramatic rise in cure rates for acute lymphocytic leukemia.
Christopher's Haven
Christopher’s Haven was founded in 2001 by Dan Olsen, a local actor, singer-songwriter and three-time cancer survivor. While receiving treatments at Massachusetts General Hospital Cancer Center, he met families struggling to care for children battling cancer, while also facing the staggering costs of extended stays near the hospital. After surviving his third bout with the disease, Dan committed himself to helping such families. Throughout their stay for cancer treatment in the Center for Pediatric Hematology Oncology, Christopher’s Haven provides young patients and their families with comfortable, clean and beautifully-furnished apartments just steps from the hospital. Built on the model of the Ronald McDonald Houses, these homes include warm, inviting sitting rooms, game areas and reading spaces. Families pay a nominal fee that is waived for those unable to afford it. Volunteers welcome each family and stock their apartment with kitchen supplies, gifts for the children and passes to local museums and sports events. Freed from concerns about lodging, family members can focus on their child’s treatment and recovery.
Perry Colmore and Lisa Adelsberger
Following three bouts of breast cancer, author Perry Colmore decided to tell the stories of others who battle cancer. The work has been healing and inspiring for Perry as well as for patients, caregivers and friends of the Cancer Center at Mass General.
Perry and photographer Lisa Adelsberger collaborated on the award-winning book, Living with Breast Cancer: 39 Women and One Man Speak Candidly about Breast Cancer. In addition, they developed two exhibitions that display photographs and testimonials from the book: the Cancer Center’s Wall of Hope and a national touring exhibit managed by the American Cancer Society.
The Wall of Hope was made possible by the Cancer Center’s Network for Patients and Families, a peer support program for patients and their loved ones. Like Living with Breast Cancer, the exhibit presents patients’ stories and portraits to offer inspiration, support and hope. Some are tales of healing; others, of coming to terms with loss. Many combine both experiences. All convey wisdom, love, courage and comfort to individuals battling this devastating disease.
Carina Comer
Carina, age 17, remembers the warmth and kindness of the doctors and nurses at the Francis H. Burr Proton Therapy Center who treated her for a brain tumor when she was eight years old. She also remembers what it was like to be in a hospital at Christmas instead of at home with her family in Connecticut. So every Christmas, Carina returns to the center to thank the people who saved her life and raise the spirits of children who are far from home and family. Carina prepares for her annual visits months in advance. She raises thousands of dollars to buy toys and other treats for the children by combining her love of baking and cooking with bake-sales and catering jobs. She arrives laden with gifts and presents them to each child, adding joy and cheer to their holiday.
Mary Susan Convery, MSW, LICSW
As the social worker in the Mass General Cancer Center’s Center for Thoracic Cancers, Mary Susan Convery meets with patients and family members who are shaken by the news of a devastating illness. She is a calm and steady presence, extending patience and understanding to people as they absorb a frightening diagnosis. This could mean listening to someone who refuses to confront an impending loss or counseling a grieving survivor.
Mary Susan provides creative and highly individualized care to people experiencing profound grief and loss. Her support group for lung cancer patients enables participants to make powerful, supportive connections with one another.
Collaborating with a multidisciplinary clinical team, Mary Susan provides insights into each patient’s psychological state and psychosocial challenges. She also uses her specialized training to support her colleagues in coping with the weight of their work and their inevitable losses. Mary Susan’s clinical skills, dedication and empathy make her a valued partner to patients and colleagues alike.
Cops for Kids with Cancer
In 2005, retired Boston Police captain John Dow and his wife Joan began conversations with MassGeneral Hospital for Children’s Pediatric Hematology-Oncology Center about ways of supporting children with cancer. John, then a cancer survivor, was sensitive to the needs of cancer patients and had a particular empathy for children undergoing challenging treatments. Soon after, the non-profit he founded,
Cops for Kids with Cancer, began directing significant support to the pediatric cancer patients in MGHfC’s care. Cops for Kids supports emergency assistance to vulnerable families, events for patients and their families, and special “wishes” for teens too old to be served by the Make-a-Wish Foundation. One 20-year-old dealing with recurrent cancer learned that he had no further treatment options just as his mother, a single parent, lost her job. A grant from Cops for Kids covered their expenses while the mother cared for her son during his final months.
Cops for Kids has provided wonderful diversions for patients and their families, such as harbor cruises on a Boston Police patrol boat and private tours of the JFK Aircraft Carrier when it was in Boston during 2007. In 2007, Captain Dow lost his battle with cancer, but his vision of supporting children with cancer and their families continues. Robert Faherty, retired Boston Police superintendent-in-chief, now leads the committed volunteers who run this superb organization.
Jessie Bancroft Cox and William Cox
A gift from Jessie Bancroft Cox (1909 - 1982) laid the foundation for cancer care and research at Massachusetts General Hospital.
In 1970, her husband William died of cancer at the hospital. That year, in memory of her husband, Jessie made a substantial gift for what was to become “the new cancer treatment center.” Five years later, the Cox Building was dedicated and for three decades, it was the home for cancer care at Mass General.
Today, the Cox Building houses radiation oncology, outpatient care for hematological malignancies, the offices of radiation oncology faculty, and the Edwin L. Steele Laboratory, which was established in 1975 with a gift from Jessie’s sister, Jane B. Steele Cook.
The Cox Building remains integral to cancer research and patient care at Massachusetts General.
Cuts for a Cause
Shaving a man’s head — or watching close up — can be worth money if the men being shaved are Boston Bruins players.
Last year, the Bruins partnered with WBCN 104.1 FM to raise $25,000 for MassGeneral Hospital for Children’s pediatric oncology unit by auctioning seats to Cuts for a Cause. Each of six top bidders shaved a player and took home his jersey while pediatric oncology patients and their guests cheered, met the players, enjoyed a buffet and received signed Bruins memorabilia.
This year, 16 Bruins participated in Cuts for a Cause, raising more than $32,000. Host Aaron Ward and the Bruins again coordinated the entire affair, from sponsorships to gift bags.
The event is just one of the ways that the Bruins support the Pediatric Hematology-Oncology Unit. “While it is thrilling to watch a game from a VIP seat,” says Heather Peach, child life specialist, “what the children value most is the personal connection with a visiting player — exchanging high-fives, playing checkers or a bedside chat about one’s family or pet.”
Dan Crane Beach Walk
Janet Crane’s husband Dan lost his battle with lung cancer in September 2007. Janet and her family marked the first anniversary of his death by organizing the Dan Crane Beach Walk in Hampton Beach, New Hampshire and St. Petersburg, Florida. The events raised more than $170,000 for lung cancer research at Mass General.
“Dan Crane loved his life and lived it with great enthusiasm,” Janet writes in the web site for the walk. “Dan fought this killer disease with the passion and dignity that defined his life. These events brought Dan’s life to a wonderful conclusion, filled with love, life and hope.”
After the Hampton Beach walk, Dan’s physician, Panos Fidias, MD, clinical director of the Center for Thoracic Cancers, spoke of the major clinical trial that now bears Dan’s name. Dan initially benefited from the smart drug, Iressa, but then built up resistance to the drug. The Dan Crane Lung Cancer Research Fund will nourish clinical and research priorities that include the work of MGH researcher, Jeffrey Engelman, MD, PhD, who is identifying mechanisms of drug resistance in patients.
Barbara Delinsky
A breast cancer survivor who was diagnosed in 1997, Barbara has had more than one life-changing encounter with the disease. When she was eight years old, Barbara lost her mother to breast cancer. Yet instead of letting cancer control her life, Barbara has chosen to empower herself and others by increasing the stores of wisdom and knowledge that are dedicated to improving outcomes for breast cancer patients.
Following her treatment at Massachusetts General Hospital Cancer Center under the care of Barbara Smith, MD, PhD, she served on the Women’s Cancers Visiting Committee at the hospital and has been an ongoing supporter of the Friends of the Cancer Center. Barbara also decided to meet a need that she and other patients shared — the need for practical advice on coping with cancer. In 2001, using her success as a novelist as a platform, she interviewed hundreds of patients and their loved ones, and published Uplift: Secrets from the Sisterhood of Breast Cancer Survivors, a handbook of first-hand tips on nurturing oneself and others throughout treatment.
Barbara donates all proceeds from the sale of Uplift to the Barbara Delinsky Charitable Foundation, which has funded a research fellowship at Massachusetts General in breast cancer surgery.
David Ebb, MD
David Ebb, MD, is an extraordinary pediatric hematology- oncology physician. He is beloved by his patients and their families, and he is also a revered teacher. He has superb clinical skills, encyclopedic knowledge and the ability to impart his expertise in a most caring and thoughtful manner.
Dr. Ebb’s knowledge and skill inspire unwavering trust. “When our four-year-old grandson Michael was diagnosed with a brain tumor,” says the child’s grandmother, “Dr. Ebb became our lifeline to his future. His devoted care sustained us throughout our ordeal. While never downplaying the dangers, Dr. Ebb helped us all, including Michael, see the good outcome that we celebrate today.”
Yet when one young patient ran out of treatment options, Dr. Ebb took the time to read to her each day. Working with Partners in Health, he has taken extreme measures to bring children from underdeveloped countries to Mass General for cancer care. Dr. Ebb represents the best in all of us and contributes enormously to the well-being of children with cancer.
Elizabeth Edwards
The nation got to know Elizabeth Edwards as she campaigned during the 2004 and 2008 presidential elections. Drawing upon the same strength of purpose, perseverance, warmth and wit that characterized her campaigning, she talks openly about overcoming significant life obstacles. In her memoir, Saving Graces: Finding Solace and Strength from Friends and Strangers, Elizabeth shares her experiences on the campaign trail, including a courageous battle with breast cancer that inspired women across the country.
An accomplished attorney and passionate advocate for children, Elizabeth is dedicated to causes that strengthen America’s communities and advance equal opportunities for all children. In 1996, she co-founded the Wade Edwards Foundation, named in honor of the first of her four children, Wade, who died that year. The foundation supports programs that foster the pursuit of excellence in young people. Elizabeth is currently working on healthcare issues as a senior fellow at the Center for American Progress.
We are honored to present Elizabeth as our keynote speaker at the one hundred 2009 dinner
Ellison 14 Nursing Staff
With the growth in the Cancer Center has come the challenge of limited capacity. Oncology nursing requires expert knowledge, skill and dedication. When Mass General decided to expand its inpatient hematology/oncology capacity by adding 15 beds on Phillips 21, the leadership and staff on Ellison 14, our Bone Marrow Transplant/ Inpatient Oncology Unit, were fully committed to the success of this expansion. They agreed to do all they could to support their nurse colleagues on their new sister unit in Phillips 21, designated the Oncology Special Care Unit. Nurses on Ellison 14 volunteered to rotate in the new unit during nights and weekends to help their colleagues care for this most vulnerable patient population and meet their complex, specialized needs. The spirit of generosity and service of these wonderful nurses reminds us of why more cancer patients choose the Cancer Center than any other hospital in New England.
Ellison Foundation
Over the past three decades, the Ellison family has had a uniquely close relationship with Mass General, the largest recipient of grant support from the Ellison Foundation, after which the hospital’s inpatient Ellison Building was named. During their lifetimes, both the late Bill Ellison and his sister Harriet Ellison Rogers gave more to the hospital than to any other charity. The foundation that survives them continues this tradition of philanthropy to the hospital, much of it to the Cancer Center. The Ellison Foundation’s pioneering support for cancer care and research includes much needed capital support for the investment of cancer facilities. The research of Ellison Foundation Scholars Hanno Hock, MD, PhD, (2004) and Jeffrey Engelman, MD, PhD, (2006) is enhancing cancer therapies with support from the foundation. Most recently, the Ellison Foundation contributed to the Circulating Tumor Cell (CTC) Project, helping the project achieve international prominence and enabling researchers to further advance CTC-chip technology that holds the potential of earlier detection and, therefore, treatment of cancer.
Mary Anne Fallon
As a prostate cancer patient of Dr. Matthew Smith, I have occasional contact with his administrative assistant, Mary Anne Fallon. On one of my visits, Mary Anne took notice of a report from the computer network recommending a CTI scan to evaluate a suspicious nodule on one of my lungs. She scheduled my CTI scan, told me where and when to go, and advised me of the results: While the nodule was benign, a five-centimeter aneurism in the aorta directly over my heart required immediate attention. Two weeks later, an operation removed the aneurism and replaced the damaged section of the aorta with a plastic sleeve. What makes Mary Anne’s action so highly commendable is that it was not her responsibility to act at all. The scans had nothing to do with my prostate cancer and were not ordered by Dr. Smith. But rather than assuming someone else would act, Mary Anne took charge and possibly saved my life
Senator Susan C. Fargo
As Senate Chair of the Joint Committee on Public Health, State Senator Susan C. Fargo (D-3rd Middlesex) penned crucial legislation establishing the Commonwealth Lung Cancer Early Detection and Treatment Research Fund. The first of its kind nationally, the bill directs a portion of the cigarette excise tax to a trust fund that supports research to advance early detection and treatment of lung cancer.
Lung cancer is the leading cause of cancer deaths in Massachusetts and nationwide. Annually, lives lost to lung cancer exceed the combined death toll of breast, prostate and colon cancers. In 2008, almost 5,000 Massachusetts citizens were diagnosed with lung cancer and 3,600 succumbed to the disease. More than 70 percent of its victims are diagnosed at a late stage, a primary factor in the abysmal survival rate.
Senator Fargo is a tireless advocate for policies and funds that promote public health. Under her leadership, the statewide smoking ban was passed in 2004, greatly reducing the hazard of second-hand smoke in public places.
Melvin and Mary Elisabeth Field
Melvin and Mary Elisabeth Field support the Cancer Center at Massachusetts General Hospital with an abiding, personal commitment.
In 2002, the couple made a gift to fund ovarian cancer research. Ovarian cancer was the disease that afflicted Melvin’s late wife, Janet.
Treated for prostate cancer at the Francis H. Burr Proton Therapy Center, Dr. Field, a retired electrical systems engineer, is grateful that this highly precise technology was available to him. He and Mary Elisabeth got to know the other patients. Many were children being treated for brain or ocular tumors, since proton therapy is less harmful to a child’s developing brain than traditional radiation. In 2004, the Fields established a charitable remainder trust that funds research to increase the availability of proton therapy for pediatric and eye cancer patients. Their trust also supports the Howard Ulfelder, MD, Healing Garden, located in the heart of the Cancer Center on the eighth floor of the Yawkey Center. Mary Elisabeth is on the board of the Friends of the Cancer Center and served on the inaugural committee of the one hundred.
Jennifer I. Flanagan
“We at North Shore Medical Center regard Jennifer Flanagan as a heroine,” says her nominator. In 2006, Jennifer was diagnosed with an aggressive gynecologic cancer that could not be treated by surgery. Under the care of James McIntyre, MD, the chair of Radiation Oncology at Mass General Northshore Cancer Center, she underwent five weeks of daily radiation treatments and weekly chemotherapy. And at Mass General, Anthony Russell, MD, treated her with five rounds of brachytherapy — a minimally invasive procedure that implants radioactive “seeds” that deliver radiation directly to tumors.
After months of strenuous treatment, Jennifer went to work raising funds for the new Mass General/North Shore Cancer Center, which will open in June 2009. A past participant in our Cancer WALK, Jennifer agreed to serve as its 2008 chair and spokesperson. At the groundbreaking of the Cancer Center, Jennifer said, “This center will enable all of us who live or work on Boston’s North Shore to obtain the best possible cancer care right here in our own back yard.”
Flow Cytometry Laboratory Technicians
Mass General flow cytometry technicians serve Cancer Center patients by providing quick and accurate diagnostic information to any and all of the hospital’s adult and pediatric hematologists. They glean this critical information from blood, bone marrow and lymph node biopsies. The technicians also provide integral support to the bone marrow transplant team by identifying and quantifying all stem cells used for transplantation. Often serving clinicians who require information within a few hours or less, the technicians are highly motivated professionals who perform their critical, behind-the-scenes work seven days a week.
Linda Garmon
Award-winning documentary producer Linda Garmon wrote, directed and produced The Truth About Cancer for PBS. Completed a few years after her husband Larry died of cancer despite receiving the best available care, the film demonstrates that the biology of cancer cells dictates how patients will do in their treatment. Challenging the uniquely American notion that patients’ personalities influence their cancer outcomes, the film shows that patients such as Larry can do everything right and still succumb to “bad biological luck.”
The film follows Linda and Larry throughout his care at Mass General, as well as other patients during their emotional and uncertain journey. Partly science and partly cathartic personal narrative, the film is a product of great courage and generosity as well as talent.
Carol A. Ghiloni, MSN, RN
Oncology nurse Carol Ghiloni has provided care to Mass General patients for more than 45 years. One of the pioneers in oncology at Mass General, Carol was founding nurse director of the hospital’s inpatient oncology unit, a position she held for four decades until her retirement.
Carol started working at Mass General in general medicine in the 60’s and soon became an assistant head nurse and then nurse director. A leader in developing oncology nursing as a specialty here at the hospital, she advocated for a dedicated inpatient unit where nurses could gain expertise in the care of oncology patients. Now serving part time as a clinical educator, Carol is teaching nurses about chemotherapy administration as well as the hospital’s new electronic medication system. The Cancer Center student nurse oncology fellowship program is named for Carol in recognition of her great contribution to oncology nursing.
Lee Giller
Four years ago, at age 48, my husband was diagnosed with stage II breast cancer. Seeking the best care, we traveled from Ohio to Massachusetts General Hospital where Lee was operated on by Dr. Barbara Smith and received his treatment plan, including four months of chemotherapy and six weeks of radiation back in Ohio. Thankfully, Lee has been cancer-free since then.
Just six months out of treatment, we and two of our children took part in a three-day, 60-mile walk that benefited Susan G. Komen for the Cure. Since that first walk, Lee and I have participated in seven other 60-mile events across the country, raising more than $100,000 to combat breast cancer. Lee makes himself available to local media for interviews and mentors others with this disease. Committed to fighting breast cancer on behalf of others as well as himself, Lee’s courageous participation and candor has educated people about male breast cancer, possibly saving lives.
James Gillespie
When patients arrive at the Adult Infusion Unit at the Mass General Cancer Center, located on the eighth floor of the Yawkey Center for Outpatient Care, for their first chemotherapy treatment, many feel utterly alone even if they are accompanied by loved ones. Once they enter the unit, compassionate clinicians engage them in superb care. Additionally, a group of dedicated volunteers keeps patients in touch with life beyond treatment, providing companionship, serving lunch and swapping stories of all kinds.
The dean of this devoted team is Jim Gillespie, a retired insurance executive who, since February 1996, has volunteered in the infusion unit three days a week. Patients gravitate to Jim, who is always alert to whatever might brighten their day. When a frail patient hankered for a turkey-on-rye, Jim obtained the nurse’s permission to fetch one from the cafeteria, knowing that the patient’s desire to eat was itself a blessing.
Jim inspires and mentors new volunteers, demonstrating to them how to serve patients with wisdom, instinct and heart.
Tessa Goldsmith, MS, CCC-SLP, BRS-S
I received fantastic treatment from all of the staff at the Mass General Cancer Center and the Massachusetts Eye and Ear Infirmary; but I am particularly grateful for the service and support I received from Tessa Goldsmith. Her excellent clinical care enabled me to quickly improve my speech and swallowing following surgery and treatment. I attribute much of my quick recovery to her attentive care and creative solutions. Tessa also took the time to listen to me and help me in all aspects of my cancer treatment, which is a bewildering, complicated and terrifying prospect for most patients. A patient must deal with multiple doctors and care providers and choose among frequently conflicting treatment options. Tessa helped me wade through this complexity, understand my options, and make sound decisions. These activities went well beyond Tessa’s job description, yet she happily volunteered her support. I thank her for all she did to help me get better faster and ease my way to recovery.
Golf Fights Cancer
Both Jay Monahan and Brian Oates are sports marketers and both share a personal connection to cancer. They committed their expertise to improving the lives of cancer patients and their families by founding an all-volunteer nonprofit, Golf Fights Cancer.
In April 2003, Brian and Jay attended the funeral of their friend and colleague Rob Stevens, who died of cancer at an early age, leaving behind his wife and three young children. The two friends ran the Boston Marathon to raise funds for Rob’s family. Soon after, recognizing the tremendous fund-raising potential within the golf community, Jay, Brian and their friends in golf created Golf Fights Cancer.
Golf Fights Cancer taps into the passion and generosity of golfers — professionals and recreational players alike — to raise funds that enhance the care of patients and their families. The nonprofit holds golfing fundraisers and devotes 100 percent of the earnings to funding equipment, services and amenities that make an immediate, positive impact on cancer patients and their families.
Mary Jo Gonzales, MS, RN, CPNP
Mary Jo Gonzales, a nurse practitioner in the Center for Pediatric Hematology and Oncology at Mass General, provides unparalleled care to her patients. She quietly attends to all the details of a child’s life — attentive care that extends to parents and siblings as well. Her calm and warmth reassure all around her. She has a particular gift in working with teenaged girls, providing them with comfort and confidentiality as they struggle with their illnesses and their adolescence.
Mary Jo brings boundless compassion to caring for children at the end of life, and she keeps hope alive for all who are in her care or work with her. One young woman with a recurrent brain tumor wanted to return to her college dorm while receiving palliative treatments. Mary Jo advocated for her patient’s wishes with the girl’s parents, college deans and healthcare staff. On weekends, she visited a five-year-old and her family at their apartment, continuing to provide care and support during the child’s last days.
Kathleen Granara-Skerry
At age 14, when her mother died from cancer, my wife Kathleen Granara became a surrogate mother to her six younger siblings. Three years later, she began a long career with the Commonwealth of Massachusetts. We married in 1981, and she became the loving stepmother of my three young sons. In 2004, at age 52, Kathy retired. The following year she was diagnosed with pancreatic cancer and told she had six months to live. A week later, Massachusetts General clinicians determined that her cancer was operable and Dr. Carlos Fernandez performed the surgery. Unfortunately, the cancer had spread and she was given a 10 percent chance of survival beyond five years. Under the care of Dr. Andrew Zhu, Kathy has undergone chemotherapy, radiation and paracentesis. Despite the toll of her treatment and undaunted by her lack of fund-raising experience, Kathy has raised $213,800 for pancreatic cancer research. She is fighting cancer with the same courage and generosity that have characterized her entire life.
Janelle Hail
At age 34, Janelle Hail was diagnosed with breast cancer. Now a 29-year survivor, Janelle has helped others afflicted with this disease. She is the founder and CEO of the National Breast Cancer Foundation. Based near Dallas, her foundation increases awareness of breast cancer through education and provides free mammograms for those in need. Its other initiatives include Beyond the Shock,® a step-by-step multimedia guide to breast cancer, the MyNBCF online community and its self-guided Early Detection Plan.
The National Breast Cancer Foundation has made substantial gifts to the Cancer Center at Massachusetts General Hospital for the Dana Farber/Partners Breast and Cervical Screening Collaborative. Its contributions have made free mammography services available to people who otherwise might not have access to this crucial diagnostic test. Janelle has saved and prolonged countless lives through her visionary philanthropy.
David Harmon, MD
Dr. David Harmon of the Center for Sarcoma and Connective Tissue Oncology at Mass General focuses on a rare and often under-funded form of cancer. His expertise, groundbreaking research and commitment to his patients and their families give us hope. He is truly the most caring doctor we have known. Although my daughter’s weekly treatments can be grueling, she looks forward to seeing Dr. Harmon. He gives her the time to ask questions and consider his answers. He is honest but reassuring, and his gentle, caring manner has given us comfort and courage. He has helped her find the strength to endure treatments week after week. Dr. Harmon provides the most competent, thorough care while putting smiles on the faces of a patient and her family who have been through so much. Emily and her best friend hosted a piano recital and raised $1,500 for Dr. Harmon’s research center. His patients talk about starting a Dr. David Harmon Fan Club. In our eyes, he is in a class by himself.
Andrew Hertler, MD
The center is named for its lead donor, Harold Alfond, founder of Dexter Shoe Company. He drove the fundraising with the desire to bring everyone the same warm and highly advanced cancer care he had received at MaineGeneral Medical Center.
The community of rural Maine, is grateful to Dr. Hertler for the center and his dedication to serving the state so loved by the Alfond family.
Konrad Hochedlinger, PhD
Dr. Konrad Hochedlinger is a principal investigator at Mass General’s Center for Regenerative Medicine and the Cancer Center. A 2007 recipient of a $1.5 million National Institutes of Health New Innovator Award, he is also an assistant professor at Harvard Medical School and a principal faculty member at the Harvard Stem Cell Institute. Dr. Hochedlinger has pioneered technology to reprogram normal cells into cells with embryonic stem cell-like properties.
A research team of scientists in Japan published findings on a method of reprogramming mature cells from mouse skins into cells with stem cell-like properties. Dr. Hochedlinger and his lab team repeated and significantly improved the reprogramming, publishing the findings in June 2007, and in the fall replicated the findings of the other team using human cells. His group was the first to produce reprogrammed cells devoid of any foreign DNA elements, which had been used initially, thus generating safer cells that could at some point be used for therapy.
This revolutionary stem cell research is providing novel insights into the key mechanisms that regulate normal and cancerous proliferation. Dr. Hochedlinger’s research may one day lead to new therapies based on tissue regeneration.
Beverly Hudson, RN, BSN
Bev joined our gastrointestinal team two years ago in the newly-created role of access nurse. Her start could not have been an easy one. She had to discover the needs of the Mass General Cancer Center community and define her role. Bev has done an excellent job of creating the role that fits our team and provides patients with unique and valuable services. As the initial contact for a patient diagnosed with cancer, Bev responds with knowledge and empathy, helping the patient schedule the necessary consults and medical interventions. She is tireless in streamlining processes for patients, bringing CT scans out to patients waiting in cars to save them the trouble of coming in; walking them to far-flung destinations within the hospital; and spending hours on the phone informing and reassuring patients and family members. When they arrive for their first appointments, patients often seek out Bev to thank her.
Molly Rose Hurkett
While maintaining a 3.8 GPA, high-school senior Molly Rose Hurkett is a varsity athlete and team co-captain in three sports, a member of the National Honor Society, and a teacher and student of dance. She is also a young person who recognizes needs in her community and takes action to meet these needs. In 2005, Molly and her friend Meaghan Finn founded Woburn Students Trying to Make a Difference, an annual fundraising walk to support breast cancer research and patient care. The friends recruited other young women and developed an effective fundraising team who solicit sponsors, obtain permits and organize the annual event while also raising awareness of breast cancer among their peers. Their organization has to date raised $60,000, all of it benefiting the Gillette Center for Breast Cancer at the Mass General Cancer Center. Molly plans to continue her fundraising work while in college studying for a nursing career.
Jennifer Hunter Yates Sarcoma Foundation
The loved ones of Jennifer Hunter Yates have transformed their grief into hope for many. In April 2004, after a courageous, 17-month battle, Jennifer succumbed to two late-stage sarcomas at age 33. Her friends and family as well as members of the Mass General Cancer Center’s sarcoma team created the Jennifer Hunter Yates Sarcoma Foundation to find a cure for this rare disease.
Weeks after Jennifer’s death, her hometown, Hudson, Mass., held its first annual 12,402 Steps to Cure Sarcoma Walk. The foundation presented Jennifer’s oncologist, David Harmon, MD, with a check tenfold larger than any he had ever received for sarcoma research. Now in its fifth year, the walk has raised $450,000 for Dr. Harmon’s research.
The foundation has challenged and empowered the MGH sarcoma team to sponsor educational seminars, open more clinical trials and add staff, including a foundation scholar. While helping Dr. Harmon and his team find a cure, the foundation also provides volunteers who support patients as they fight and recover from sarcoma.
J. Keith Joung, MD, PhD
Dr. Keith Joung is associate chief of Pathology for Research, and director of the Molecular Pathology Unit at Mass General. He is also an associate professor of Pathology at Harvard Medical School and a member of the Center for Cancer Research and Center for Computational and Integrative Biology at Mass General.
Dr. Joung has pioneered a new approach for targeting specific DNA sequences in cells using synthetically constructed DNA binding proteins. This broadly applicable technology provides an important research tool for introducing targeted genome modifications in a wide variety of monogenic diseases because it will enable correction of defective copies of genes. After considerable effort, this revolutionary technology has now become practical and is producing exceptional results in zebrafish and other model organisms. It is also being explored for use as a therapeutic approach for diseases such as cystic fibrosis and sickle cell anemia.
Just ‘Cause Breast Cancer Walkers
Walking 20 miles a day for three days, a dedicated group of women have raised almost $750,000 to advance breast cancer research and patient care. Because all expenses are paid by the walkers and volunteers, the annual Just ‘Cause Breast Cancer Walk donates 100 percent of its proceeds to two recipients: the Virginia Thurston Healing Garden in Harvard, Mass., a facility dedicated to promoting the healing process of breast cancer patients, and the Gillette Center for Breast Cancer at Mass General Hospital.
Now in its seventh year, Just ‘Cause was founded by four friends — Jo Edmunds, Tina Flaherty, Sarah Mitchell and Noreen Beck. Noreen lost her 10-year battle with breast cancer on December 15, 2008, a week before her 50th birthday. In Noreen’s place, her husband Mike joined the Just ‘Cause walkers to once more meet their 60-mile challenge on behalf of all breast cancer patients and their loved ones.
Helen Kearns and Team Kearns
Helen Kearns is the widow of Patrick Kearns Sr., a Brookline police officer who became a patient of the Mass General Cancer Center in 2000, when, at age 54, he was diagnosed with a brain tumor. He died the following year, survived by his wife and six children. The clinicians who cared for Patrick reside in the Stephen E. and Catherine Pappas Center for Neuro-Oncology.
The Kearns family benefits the center by holding the annual Patrick Kearns Sr. Memorial Golf Tournament and donating the proceeds to the Pappas Center Family Fund. Most donations from the Kearns family support the center’s weekly Caregiver Day, when medical assistants distribute gift envelopes to the loved ones who accompany a patient for a medical appointment. The envelope includes a $10 gift card to the MGH General Stores, a $5 gift certificate that can be used at any of the hospital coffee shops, a candy bar and a parking voucher for the visit. An enclosed letter from the Pappas staff thanks the family member or friend for tirelessly caring for the patient. Upon receiving this small token of appreciation, the patients’ loved ones are moved that they are being recognized. The patients are happy to see that their care-giving helpers are being acknowledged. Thanks to the generosity of the Kearns family, this popular program lifts the spirits and warms the hearts of caregivers and patients alike.
Michele and Steven Kirsch
MIT graduate Steven Kirsch has founded and chaired notable Silicon Valley start-ups. He and his wife Michele are also renowned in the Silicon Valley as philanthropists. Through grants from their Kirsch Foundation, a non-staffed supporting organization of the Silicon Valley Community Foundation, as well as through advocacy, the couple has contributed to a safer and healthier world. In 2007, Steven was diagnosed with Waldenstrom’s Macroglobulinemia, a rare blood disease. Grants from their foundation are now helping to support progress toward treatment and cure of this rare cancer.
Howard Koh, MD, MPH
Dr. Howard Koh is the Harvey V. Fineberg Professor of the Practice of Public Health and director of the Division of Public Health Practice at the Harvard School of Public Health.
Focusing on cancer control and prevention, Dr. Koh is developing innovative interdisciplinary approaches to promote and protect the health of communities. Dr. Koh was among the first to apply cancer-screening principles and generate national data on melanoma prevention and education. As Massachusetts Commissioner of Public Health from 1997 to 2003, he oversaw his groundbreaking Massachusetts Tobacco Control Program. At Harvard, he advances other community-based strategies to promote cancer prevention and early detection in collaboration with such organizations as the Centers for Disease Control and Prevention and the National Cancer Institute (NCI).
Dr. Koh is principal investigator of the NCI-funded, five-year program Mass- CONECT (Massachusetts Community Networks to Eliminate Cancer Disparities through Education, Research and Training), which brings underserved and underinsured minority populations such critical services as breast and cervical cancer screening.
Glenna Kohl
Four years ago, Glenna arrived for treatment at the Melanoma Center and Pigmented Lesion Center at Mass General. “Glenna changed each of us who cared for her,” according to her nominator. She fought a hard fight against her stage III melanoma and always stayed positive throughout surgery, radiation and the clinical trials she endured to help future patients, despite their grueling side effects.
The former lifeguard and 2005 graduate of Salve Regina University was a vivacious and smart young woman with all-American good looks. Glenna loved sports, music and animals, especially her dog Marilyn, a source of joy. An ardent spokeswoman about the dangers of unprotected exposure to the sun’s ultraviolet rays, Glenna even addressed lawmakers on Beacon Hill, a pink bandana over her bald head, to advance a bill that would bar children under the age of 16 from tanning booths.
In November 2008, at age 26, Glenna succumbed to cancer at home. Her funeral celebrated an extraordinary young woman who touched the lives of all who knew her.
Elyse Levin-Russman, MSW, LICSW
Elyse brings remarkable and dynamic leadership to Mass General’s outpatient social work unit. Over the past seven years, she has built a program that provides our patients with seamless inpatient and outpatient support while developing many new services for patients and their families. These offerings include parent support groups, teen outings and an arts program. Elyse also organizes our annual holiday party for patients and families. All of these initiatives have been overwhelmingly successful, improving the quality of life of our patients and their families. Elyse combines imaginative and resourceful leadership with excellent interpersonal skills, and she creates a warm, caring and culturally sensitive environment that is inviting to all of our patients. She has made a huge difference in the lives of so many children who are coping with life-threatening illness.
Lung Cancer Alliance – Massachusetts
Lung cancer is the most common cause of cancer death in the United States. The Lung Cancer Alliance is a nationwide support and advocacy organization serving those living with or at risk of lung cancer.
The co-chairs of Lung Cancer Alliance — Massachusetts are Diane Legg, a lung cancer survivor, and Joanne O’Connor, whose sister died of lung cancer. “Too many are dying needlessly because of the lack of more robust early detection and treatment programs,” says Joanne.
Lung Cancer Alliance — Massachusetts raises awareness about lung cancer and the resources available to patients and also works to change policy. Alliance representatives testified in support of legislation that designated November as Lung Cancer Awareness Month. They also worked with State Senator Susan C. Fargo (D-3rd Middlesex), Senate Chair for the Joint Committee on Public Health, as she authored legislation that directs a portion of the cigarette excise tax to research in the early detection and treatment of lung cancer.
Hannah Lyons, RN-BC, MSN, AOCN
Within months of joining Phillips House 21, clinical nurse specialist Hannah Lyons made an enormous impact on oncology nursing care at Mass General.
Hannah arrived just after the hospital decided to transform Phillips House 21 into an oncology special care unit. The unit had to rapidly expand its oncology nursing practice. Although its nurses were highly experienced in medical nursing, when Hannah started only three were chemotherapy-certified.
Within four months, 15 nurses gained this certification. Hannah led the process, mentoring nurses working toward certification and supporting oncology nurses from Ellison 14, a partner unit in oncology triage and treatment, who voluntarily rotated on Phillips 21 to assist with this challenging transition.
A gifted teacher and clinician, Hannah sets people at ease, even in a critical clinical situation. Her calm, warmth and confidence as well as her expertise helped the Phillips 21 team rapidly gain an entirely new skill set. Soon, all 40 nurses will be certified in chemotherapy, an achievement that has elevated morale while enhancing practice and benefiting patients.
Joyce MacLean
As an administrative assistant in the Mass General Department of Radiation Oncology, Joyce MacLean organizes our daily activities in a way that lets us focus our time and energy on giving our best to our patients. She radiates joy and competence. While doing her job very well, Joyce tirelessly seeks other opportunities to help co-workers and patients. Staff and patients alike benefit from her compassion and resourcefulness. Our patients constantly praise her. They turn to Joyce with the confidence that whatever their questions or concerns, she will gladly and quickly find the right resource to meet their needs. Joyce is always striving to improve her work and enhance her department’s workflows to better serve patients. Joy is a delightful and essential member of our team who is valued by both staff and patients.
Henry Mankin, MD and Herman Suit, MD
Colleagues for nearly four decades, Drs. Henry Mankin and Herman Suit have profoundly improved outcomes for cancer patients and mentored future leaders in their respective fields.
Dr. Mankin is a senior research consultant for the Orthopaedic Oncology Service at Massachusetts General Hospital and the Edith M. Ashley Professor Emeritus of Orthopaedics at Harvard Medical School. From 1972 to 1998, he was chief of Orthopaedic Surgery at Mass General. A founder of radiation oncology, Dr. Suit is the Andres Soriano Distinguished Professor of Radiation Oncology at Harvard Medical School and was the first chief of Radiation Oncology at Massachusetts General.
Working together, Drs. Suit and Mankin pioneered limb-sparing treatments for patients with upper and lower extremity sarcomas, using radiation to remove tumors without debilitating surgery. Both doctors have won many awards for their breakthroughs. Dr. Suit received the 1997 Charles F. Kettering Prize, the nation´s most distinguished prize in clinical cancer research. The School of Medicine at the University of Pittsburgh, Dr. Mankin´s alma mater, established the Henry J. Mankin, MD, Endowed Chair in Orthopaedic Surgery Research in his honor.
Marie C. Petrilli Cancer Treatment and Research Memorial Fund
A decade ago, Marie Cavaleri Petrilli, a 39-year-old mother of two, died of non-Hodgkin’s lymphoma. Marie’s family and friends created a foundation in her memory to help others faced with a cancer diagnosis. Most of the foundation’s gifts have come to the Mass General Hospital Cancer Center. The first donations benefited patients and caregivers on Ellison 14 at Mass General, the bone marrow transplant unit where Marie was treated for 15 months.
In gratitude for the expert, compassionate care that Marie received, the fund sponsors an annual award that recognizes two oncology nurses for their exemplary service. Marie’s fund also renovated the unit’s lounge and purchased radios, CD players and refrigerators for every room. In addition, the fund helps patients in financial need with such expenses as transportation, child care and lodging; and supports the research of Thomas R. Spitzer, MD, director of the Bone Marrow Transplant Program.
Marie’s loved ones have held numerous fundraisers that include a silent auction, a five-kilometer road race and a threemile family walk. “Marie never, ever gave up her will to live,” says Al, Marie’s husband. “We want to give patients — many of whom will beat cancer — the hope she had.”
MGH Chelsea Cervical Outreach Program
Located two miles north of Boston, Chelsea has a large immigrant population and poverty levels that are more than twice the statewide average.
The Mass General Chelsea Cervical Health Outreach Program is a collaborative initiative designed to increase rates of follow-up for women, particularly Latina, who have had abnormal pap smears, with the goal of preventing cervical cancer.
Its team includes staff from the Cancer Center, Mass General Chelsea HealthCare Center, the Cancer Center’s Colposcopy Clinic, Mass General Community Health Associates and Partners Community Benefit Programs. They support medically underserved primary care patients from Chelsea who require colposcopy and other follow-up care and treatment. The program provides these patients with navigation services that enable them to access the care they need. Team members help patients coordinate appointments and monitor their compliance with tests, treatments and follow-up visits. Since its inception in April 2004, the program has served 431 patients — more than 70 percent of whom are Latina and primarily speak a language other than English.
Steven McAfee, MD
In May 2003, my daughter Lindsay was diagnosed with Hodgkin’s disease. She lost her battle with cancer on January 19, 2009. Lindsay wanted very much to nominate Dr. Steven McAfee for the one hundred. I am nominating him on her behalf.
During all of Lindsay’s treatments, everyone we came into contact with at the Mass General Cancer Center was wonderful to us. However, Dr. McAfee stands out as the most dedicated, caring and loving person I have ever met.
His compassion and wonderful sense of humor made even the worst days easier to handle. When Lindsay had bad news, he was there to hold her hand, offer advice and comfort her. I know how badly he wanted to win this battle.
In December, Lindsay faced a third transplant. Her condition had worsened and she was consumed with anxiety. Dr. McAfee hugged her and told her to go home and have a wonderful Christmas. She left that day happy and had a great Christmas with her son.
Melanoma Center and Pigmented Lesion Center Team
I became a patient of the Melanoma and Pigmented Lesion Clinic at Mass General last year when, at age 32, I was diagnosed with acral melanoma. At my first appointment, Drs. Arthur Sober and James Cusack met with me to discuss my care. What struck me was their genuine concern for me as a patient. The clinic waiting area was busy that day, yet they made me feel like I was their only patient. I left with the confidence that I was in expert medical care and also that I was being cared for as an individual. With each subsequent phone call and appointment, this team — including nurse practitioner Krista Rubin and melanoma coordinator Brie Trefrey — has continued to amaze me with its level of support and concern for my well-being. I am extremely grateful to have the Melanoma Center and Pigmented Lesion Center team behind me as I face life-long monitoring of my disease.
Michael Milken
In 1993, after 20 years of supporting research on other diseases, financier and philanthropist Michael Milken was diagnosed with prostate cancer. Told he might not live beyond a year, he founded the Prostate Cancer Foundation, the world’s largest philanthropic organization for prostate cancer research.
Since then, prostate cancer death rates have plunged and government funding for its research has greatly expanded — helped by the foundation’s advocacy and its grants to 200 institutions, including the Cancer Center at Massachusetts General Hospital. The foundation’s grant supports research by Cancer Center Director Daniel Haber, MD, PhD, whose advances in circulating tumor cell (CTC) chip technology are likely to yield tools that predict disease progression and detect the effectiveness of treatment.
Driving Mike’s philanthropy is his hope that by 2016, cancer will no longer be a cause of death. He also supports medical innovations through FasterCures, the Milken Family Foundation and the Melanoma Research Alliance. Fortune magazine called him “The Man Who Changed Medicine.”
Jane Miller
“My infusion nurse, Jane, always greets me with a big smile and hug,” says Beverley. “She is both a highly competent professional and a warm, positive person.”
Jane’s patients and peers admire her expertise as well as her compassion. Jane is ever alert to new tools and practices that can benefit her patients and shares her knowledge with colleagues. Hyper-vigilant during every treatment, Jane takes every measure to ensure the safety and comfort of those in her care while lifting their spirits.
“When my mother received chemotherapy, she always brightened when Jane was assigned to her,” says Debbie. “Jane provided unfailing warmth, respect and superior nursing care. When my mother died, Jane sent us a touching letter of condolence.”
“Jane was my infusion nurse throughout my chemotherapy for breast cancer,” says Joanne. “From the start, Jane was informative and encouraging and she welcomed my calls between treatments. At our 40th session, she brought us an anniversary cake. Soon after, my daughter was diagnosed with breast cancer. Now, she receives the same fine care that Jane gave me.”
Kelly Shaw Murphy
In 1997, Kelly Shaw Murphy was diagnosed with stage III of an aggressive form of brain cancer. After undergoing surgery, chemotherapy and radiation at the Mass General Cancer Center, Kelly wanted to participate first-hand in fighting her disease. In September 1999, a month before her wedding to Jim Murphy, she organized a 5K walk in her hometown, Newburyport, Mass. She and her sisters came up with its catchy name, Strides of Survival (SOS). Now in its 11th year, the walk in Maudslay State Park has raised more than $250,000 for Mass General Cancer Center’s brain tumor research program.
While raising funds, Kelly and her team also lift spirits, empowering patients and their loved ones to join their effort. Many SOS participants have since organized similar fundraisers. Kelly’s life also inspires her fellow cancer survivors.
Candy O'Terry
In 1993, Candy O’Terry created the MAGIC 106.7 Exceptional Women program, a forum for women who overcome obstacles to achieve greatness in their lives. Co-hosted by O’Terry and Gay Vernon, the Sunday morning radio program has won 29 awards for excellence in women’s programming making it the most successful radio program of its kind in the nation.
When she was 18, Candy lost her mother to breast cancer, and she uses her celebrity status to promote early detection and treatment of women’s cancers. The annual Exceptional Women Awards luncheon has raised more than $150,000 to support patient care and research. Some of this money has contributed to Mass General Cancer Center programs for patients and their families, such as the Take Good Care Packs program, which helps parents guide their children in living with cancer. Backpacks provide families with educational and therapeutic materials that engage children and encourage communication about cancer.
A spokesperson for the American Cancer Society’s annual Making Strides Against Breast Cancer Walk and the Pink Rose Foundation, Candy has been honored by the Gilda Radner Foundation for her support in the fight against women’s cancers.
Jean O'Toole, PT, MPH
Mass General physical therapist Jean O’Toole is an extraordinary individual who brings her patients great creativity, knowledge and compassion. Jean called attention to lymphedema, a problem that affects our patients, and she designed interventions to treat this condition and reduce the discomfort and suffering it causes. Through research, education and innovative practices coupled with great patience and kindness, Jean has helped hundreds of patients live with this chronic ailment.
Jean also has educated many professionals about diverse aspects of orthopaedics, most recently in relation to cancer. She now concentrates her clinical practice on cancer patients. The empathy and expertise of her care make a very positive impact on the quality of life of her patients.
Center for Pediatric Hematology and Oncology Staff
Two families express their gratitude to the Mass General Pediatric Hematology/Oncology staff:
“Although our daughter Chloe lost her fight with leukemia, our 10 months with Dr. Howard Weinstein, Dr. Mary Huang and their team was an uplifting, positive journey. From day one, they filled us with hope. They did everything in their power to cure Chloe while making each day as normal as it could be. This wonderfully talented group remains constantly in our thoughts.”
“When our son Dan was diagnosed with leukemia, from the start we had confidence in the ‘Pedi-Hem/Onc’ team. Dr. Huang is Dan’s oncologist and we could not be happier. Nurse practitioner Patricia Kent calmed us when Dan received his first lumbar punctures and helped us through tough times. The nurses — including Suzanne, Karen and Kim — are spectacular. Others helped Danny, too. Heather introduced Dan to Boston sports celebrities. Elyse helped him cope with treatment and advised him on Make-A-Wish. Noreen and Melissa always greeted Dan with big smiles. The entire staff of Yawkey 8B does a great job in caring physically and emotionally for a sick child.”
Peter's FUNd Racer
In 1999, melanoma claimed the life of Peter M. Newton at age 46. Peter’s family and friends created a fund-raising event, Peter’s FUNd Racer, at Sugarbush Resort in Vermont, where for 12 years Peter served on the Sugarbush Ski Patrol. A ski race for all ages and abilities, Peter’s FUNd Racer raises money to support melanoma research and the care of melanoma patients and their families. The event has raised more than $400,000 for the Melanoma Research Fund at Massachusetts General Hospital Cancer Center. These funds have supported research on the genetic causes of melanoma and the design of new treatments that use the body’s immune system to combat the disease. Peter’s FUNd Racer also raises awareness of sun safety and melanoma among people who, like Peter, are in the prime of life and share his enjoyment of an active outdoor lifestyle.
Phillips 21 Nursing Staff
In response to growing demand for inpatient hematology oncology services, Mass General decided to transform Phillips House 21, formerly a general medical unit, into an oncology special care unit. But such a transition required far more than simply dedicating more beds to such patients, who need highly specialized care.
Expert medical nurses staff Philips 21 but only a few were chemotherapy-certified or trained in the practice of oncology nursing. They faced a tremendous learning curve to gain such expertise. Yet they embraced this challenge with extraordinary enthusiasm, skill and grace. Building upon their rich medical nursing practice, the team has rapidly developed the knowledge and skills to care for patients across the trajectory of the cancer experience, including the administration of complex chemotherapy regimens. We welcome our new oncology colleagues in Phillips House 21 and deeply admire their dedication to patient care.
Pink and Black Campaign
Mayor Thomas M. Menino and the Boston Public Health Commission launched the Pink and Black Campaign to draw attention to the disparities in breast cancer survival faced by black women. Black women are more likely to die after being diagnosed with breast cancer than women of other races. The campaign encourages black women to defy these odds and proactively obtain screening and treatment.
The faces of the campaign are its Pink and Black Ambassadors, real-life breast cancer survivors whose stories inspire their sisters to take action on their own behalf. Their portraits and messages appear on billboards, buses and other media outlets.
The Boston Public Health Commission is working with the Massachusetts Department of Public Health to extend the campaign to Springfield, MA.
Outreach and education programs such as the Pink and Black Campaign are potent weapons in the fight for equality in health care.
Elizabeth A. Rafferty, MD
At the Mass General Cancer Center, innovative and compassionate care begins with screening and diagnosis. The Avon Foundation Comprehensive Breast Evaluation Center offers the most advanced breast imaging, surgical screening and pathology services available within a comprehensive approach to evaluation that puts patients first.
Dr. Elizabeth (Betty) Rafferty and her colleagues are renowned experts in the diagnosis and staging of breast cancers using technologies that are transforming breast imaging, such as stereotactic breast biopsies, new tools of nuclear medicine and MGH-patented digital tomosynthesis. Their drive for better, earlier diagnosis provides patients with the benefits of imaging breakthroughs that detect cancers missed by standard mammography and greatly reduce false positive results, sparing patients needless follow-on imaging — and anguish.
Avon Center staff members bring the same dedicated, attentive care to their interactions with each patient. “Any encounter between a patient and a nurse or physician can offer reassuring information, comfort and solace or, if handled poorly, cause confusion and despair,” says Betty Ann, Betty’s nominator. “No matter how busy they are, Dr. Rafferty and the team at the Avon Center always take the time to inform anxious patients of their imaging results with great compassion and sensitivity.”
Noopur Raje, MD
When I was diagnosed with multiple myeloma, I was too distraught to make decisions. But from the moment I met Dr. Raje at Mass General, I felt I was in safe hands. She helped me understand what was happening to me, formulate a treatment plan, and find my way along this difficult path.
At every turn, I’ve found that I can rely on Dr. Raje. Throughout all the ups and downs, two constants give me a foothold: the love of my family and the compassionate and steady care I receive from Dr. Raje. During every visit, she is completely present with me, and because she is committed to candor, I never have to worry about reading between the lines.
Now I am in remission; but my battle continues, with Dr. Raje at my side. When it comes to the latest myeloma treatments, she is way ahead of the curve — and is helping to forge that future. Dr. Raje brings great expertise to all she does, as well as grace and humility.
Barbara Rattner, RN, MS
As nurse manager, Barbara has created the structures through which nurses participate in clinical trials. She was instrumental in developing the Mass General Cancer Center Protocol Office’s staff of 11 research nurses and 20 clinical research coordinators. She is a working manager who has her finger on the pulse of all clinical activity associated with clinical trials. Barbara reviews all clinical trial protocols for nursing feasibility, with patient safety as her priority. On any given day, she may be orienting and training new staff, providing direct patient care, supervising research nurses and meanwhile instructing an Infusion Unit nurse in the particulars of a trial.
Barbara’s steadfast devotion and commitment to clinical trials as a source of new cures for cancer influence every nurse who works with her. Her courage and tenacity when positive outcomes are infrequent also inspire her staff. Barbara instills in her staff deep faith in the importance of their work and helps patients understand the value of their volunteerism.
The Rendina Family
Bruce Rendina was a recognized leader in the healthcare industry in both business and philanthropy. He founded and led the Rendina Companies, a medical real estate development firm. In 1997, he and his wife Marji established the Rendina Family Foundation, which supports research to develop cures for cancer and aims to enhance the quality of life for families and individuals who have been affected by cancer.
In December 2006, at age 52, Bruce lost his own 17-month battle with brain cancer.
Bruce’s family continues to guide his business as well as his fight against cancer. Marji along with sons Michael, Richard, David and Richard’s wife, Trish, serve as directors of the family foundation. His son, Richard, is the company’s chairman and CEO, and his son, Michael, is executive vice president of operations. Marji and her children are active in the foundation: Marji is vice president and Michael and Richard are trustees.
Annually, the foundation hosts the Raising the B.A.R. Bruce A. Rendina Memorial Golf Tournament. At the May 2008 tournament, the Rendinas presented $500,000 to Mass General leadership for brain tumor research at the Cancer Center, where Bruce received his care. The Rendina family has committed nearly $1 million to the Cancer Center for unrestricted support and brain tumor research.
Elizabeth A. Bennett Rice
A vibrant woman who enjoyed a thriving career in the global securities industry, Elizabeth Bennett Rice was for years a steadfast participant in the 192-mile Pan Mass Challenge, raising funds to combat cancer long before her own diagnosis.
At first misdiagnosed by a local gynecologist, Beth went to Mass General as her symptoms worsened. The day after her CT scan, surgeons removed a basketball-sized tumor. At age 52, she was diagnosed with a rare and aggressive ovarian cancer. Cancer free for a year, Beth retired, toured France with her husband Peter and friends, and founded the Madam Ovary Foundation to fund ovarian cancer research and education.
Two years later, in October 2008, Beth died at home in New Castle, NH. Continuing Beth’s fight, her foundation targets early detection of ovarian cancer, which has symptoms like those of menopause or intestinal disorders. Grantees include Mass General researcher Steven J. Skates, PhD, who is working on a blood test that identifies early-stage ovarian cancer.
Linda Rivera
Throughout my twice-weekly chemotherapy for multiple myeloma at Mass General, clinical research coordinator Linda Rivera has given me reliable medical care coupled with compassion.
Linda’s demeanor toward me and my loved ones is always characterized by warmth and respect. She is highly organized and makes sure that I understand my medications and schedules. She answers all my questions or quickly obtains the information from others.
I recall one particularly awful day — weeks into treatment. My assigned nurse was out and another struggled to insert the IV. Just as I broke down crying, emotionally brittle from steroids, Linda appeared and minutes later returned with a nurse who easily completed the insertion.
Linda’s vigilant and kind care helps me maintain my equilibrium. She doesn’t just do her job. She always strives in every way to nurture the well-being of her patients.
Jeanne Bryan-Rodriguez
As the first person most patients interact with when they are treated by surgical oncologist Michelle Gadd, MD, Jeanne Bryan-Rodriguez has helped hundreds of people navigate the Mass General Cancer Center, from organizing complex schedules and booking tests to confirming appointments to ensure they make the most of their care.
Even over the phone, Jeanne is able to soothe an anxious patient and she quickly establishes a warm rapport with each individual in Dr. Gadd´s care. She is an integral member of the care-giving team by being the calming voice and responsive liaison to every patient who turns to her with a question or concern.
When they arrive for their first visit, patients she has helped by phone or e-mail often seek her out to express their gratitude. With her uncommon empathy and nonstop professionalism, Jeanne eases their start at the Cancer Center and supports their progress throughout treatment.
Charles "Mickey" Rooney
Charles “Mickey” Rooney lost his mother and brother to cancer, and in 2006, his wife Darcy died from the disease. With great personal commitment, he honors his loved ones and continues their battle against cancer. Charles has been donating blood platelets to the Dana-Farber Cancer Institute for more than 24 years, often up to 24 times per year, and recruits other donors. Since 1983, he has also been riding in the Pan-Massachusetts Challenge, single-handedly raising more than $140,000 for life-saving cancer research and treatment from his sponsors. And he has convinced friends to join him in the challenging 190-mile fundraiser.
“We at the International Brotherhood of Electrical Workers (IBEW) Local 104 stand with our brother with admiration and support for his sacrifices and his deep dedication to the fight against cancer,” says his nominator..
David P. Ryan, MD
While leading a renowned specialized oncology group at Mass General, Dr. David Ryan is a compassionate and skilled physician who is revered by his patients.
“My husband was diagnosed with pancreatic cancer and died three months later,” says one patient’s wife. “Dr. Ryan was honest with us in a way that reassured us. Always within reach, he helped my husband find the courage to persevere as normally as possible until the very end. A year later, our daughter chose to forgo favors at her wedding and instead contributed to Dr. Ryan’s pancreatic research.”
The wife of another patient says, “Five years ago, my husband was diagnosed with stage III pancreatic cancer. Under the care of a wonderful team led by Dr. Ryan, my husband still enjoys his life and loved ones. Although his cancer has metastasized into his liver, Dr. Ryan gives us courage and if one thing doesn’t work, he tries another. We know that Dr. Ryan will do all in his power to extend my husband’s quality of life as long as possible.”
Center for Sarcoma and Connective Tissue Oncology Team
The Center for Sarcoma and Connective Tissue Oncology at Mass General specializes in the diagnosis and treatment of sarcomas, rare tumors that arise in the bone or soft tissue. One of the largest sarcoma treatment groups in the country, the Center’s team of expert clinicians provides complex, highly specialized care to patients, both children and adults. Patients receive comprehensive, multidisciplinary care in one place at the center, including treatments that may incorporate traditional and novel chemotherapy and radiation procedures, reconstructive surgery, and follow-up care to help them live their lives as fully as possible.
“From the time patients walk through the door they are treated with warmth and kindness,” says a young patient’s parent. “These are very special people who are devoted to patients. When my seven-year-old gave a name to the skeleton on display, the staff decided to surprise her. When she came back, much to her delight, the skeleton was in her examination room, outfitted in a dress and holding a note just for her.”
Leslie Schlesinger
Leslie Schlesinger has contributed significantly to the Mass General Cancer Center’s melanoma immunotherapy research program that is under the direction of Jennifer Wargo, MD. Leslie has introduced other philanthropists to the breakthrough melanoma immunotherapy research underway at the Cancer Center by hosting a major event at her and her husband’s Palm Beach home, where she invited friends and colleagues to hear directly from Dr. Wargo about her research. Leslie is tireless in her support of this critical area of cancer research — support she has provided with generosity, grace and unrelenting commitment.
Deborah Kann Schwarzberg
Deborah Kann Schwarzberg is the founder of the Richard David Kann Melanoma Foundation, which through innovative educational programs informs the public — particularly adolescents — of how to prevent melanoma, a deadly but avoidable cancer. Debbie has also collaborated with the Mass General Cancer Center on educational and fund-raising events and introduced many potential donors to the hospital.
Established in 1995 after her brother Richard died at age 45 from melanoma detected at an advanced stage, the nonprofit foundation bases its educational program on the SunSmart™ skin cancer prevention campaign of the Cancer Council Victoria in Australia. The foundation’s SunSmart America™ curriculum includes segments for every grade from kindergarten through senior year of high school and provides classroom materials in English, Spanish, Haitian Creole and Portuguese.
By educating the public about sun safety as well as skin cancer prevention and early detection, Debbie — through the foundation she established in her brother’s memory — is saving lives.
William U. Shipley, MD
Dr. Shipley’s patients praise his knowledge, ability to explain research, competent and calm manner and warm humor. They also speak with gratitude of his tremendous impact on their lives. “I came to Dr. Shipley with a diagnosis of advanced prostate cancer eight years ago,” says the patient, Mel. “He was very positive and upbeat in his approach and proceeded with injections and radiation over an extended period of time. I am now 81 years of age and in good health. I always feel very much at ease with Dr. Shipley, whom I visit once a year for a check up. I feel good mentally and physically thanks to Dr. Shipley.” Another patient, Fredrick, says, “Because of Dr. Shipley’s expert care and knowledge, I have been cancer-free for the past nine years. He is a very intelligent and compassionate doctor who is interested in the care of the whole patient. My family and I are extremely grateful.”
Michelle C. Specht, MD
When I was diagnosed with breast cancer, Dr. Michelle Specht at Mass General Cancer Center became the doctor in charge of my treatment. I feel fortunate to have been in the care of Dr. Specht, who brought vast knowledge and skill to my treatment. She also provided a kind and upbeat attitude that was infectious and helped me with my recovery. Her support was vital to me throughout my experience as a cancer patient. I find it hard to imagine how I could have gone through this challenging period without Dr. Specht. I never had any doubt that I was receiving the best possible care.
Jane Bancroft Steele and Edwin L. Steele
In 1975, a gift from the late Jane Bancroft Steele Cook established the Edwin L. Steele Laboratory for Tumor Biology. Named in memory of her husband, the Steele Laboratory is a world leader in quantitative tumor pathophysiology. This early investment in cancer research at Mass General has provided a solid foundation for today’s research discoveries and treatments. Key achievements of the Steele Laboratory include the development of sophisticated animal models and innovative imaging technology to reveal the inner workings of solid tumors; the translation of pre-clinical findings to patients, including brain and colorectal cancer patients; and the training of more than 200 physicians and scientists, many of whom have gone on to become world leaders in their areas of expertise.
Under the direction of Rakesh K. Jain, PhD, Steele Laboatory researchers are dedicated to improving the prevention, detection and treatment of cancer through a better understanding of tumor pathophysiology and host-tumor interactions. Their research is working to overcome vascular, interstitial and cellular barriers to molecular medicines that advance detection and treatment of primary and metastatic tumors, and translating these strategies from bench to bedside.
Jane also endowed the Andrew Werk Cook Professorship of Tumor Biology, currently held by Dr. Jain.
Antonia Stephen, MD
All members of the Mass General Cancer Center possess an unusual combination of skills that go well beyond the knowledge they need to maintain high performance in their specific roles. These qualities include a deeply optimistic, positive and helpful attitude toward patients and each other.
Dr. Antonia Stephen exemplifies the best in us. She is a consummate cancer surgeon, dedicated to improving the lives of her patients. She strives to better the human condition through pioneering cancer research. And she has galvanized the resources of the Cancer Center to do battle against two types of tumors: endocrine and melanoma. Her patients benefit from her combination of judgment, exquisite surgical skills and warm bedside manner.
T.J. Martell Foundation
The T. J. Martell Foundation began with a promise from a father to a son. T.J. Martell asked his father, music industry executive Tony Martell, to raise one million dollars for leukemia research. Such lifesaving work had enabled the young man, who was afflicted with leukemia, to reach his 19th birthday, two years beyond his original prognosis. T.J. died later that year, and Tony, along with other music industry executives, artists and friends, upheld the promise and organized their first fund-raising event, a concert in September 1975 at Buddy Rich’s club in New York City. The night was a huge success — and the start of even greater fulfillment of a father’s promise to his son. That night, Tony founded the T.J. Martell Foundation to honor his son and help others who suffer from devastating diseases. Aimed at saving lives, the nonprofit foundation has grown into a nationwide organization and raised more than $225 million to benefit eight flagship research centers developing early-stage, innovative treatments and cures for leukemia, cancer and AIDS.
Alphonse Taghian, MD, PhD
In 2001, at age 36, I was diagnosed with stage III breast cancer. With four children eight years old and younger, I was devastated to learn I had a 7 cm tumor. I was scheduled for a mastectomy at a suburban hospital but then turned to Mass General. After a wonderful response to a clinical trial led by Dr. Taghian, I was able to undergo a lumpectomy instead of mastectomy.
Dr. Taghian is one of the most dedicated and compassionate doctors I have known. Along with exceptional medical care, he provided guidance and encouragement throughout that long year at Mass General. He cares about all the needs of his patients as human beings. His many other patients share my gratitude for going through such a debilitating experience with a physician who gives us hope when odds and statistics are not always on our side. Seven years later, I am cancer-free thanks to the care I received from Mass General and Dr. Taghian.
Kelley Tuthill
WCVB-TV newswoman Kelley Tuthill could have battled cancer in private. Instead, the award-winning journalist and mother of two used the abundance of talent, media resources and good will at her command to share her experience with television viewers and on-line users.
Diagnosed at age 36 with stage III breast cancer in December 2006, Kelley writes on her web site, “I felt utterly overwhelmed and scared to death. My husband and I not only had to process a lot of information quickly, but also make countless decisions.”
Inspired by the stories of survivors whose frank recounting of what she too was going through “made it all seem less scary,” Kelley created a candid, 10-part video diary that follows her from diagnosis through treatment and recovery. Launched in January 2007, her on-line diary has received more than one million page views. The site also includes a blog, medical information and links to local agencies helping breast cancer patients. Kelley is also a vigorous fundraiser and frequently speaks about cancer at schools and community organizations.
V Foundation for Cancer Research
Jim Valvano and ESPN founded the V Foundation for Cancer Research in 1993, just months before he succumbed to bone cancer. An award-winning sports commentator, earlier in his career Jim was a charismatic coach who, against high odds, led North Carolina State University to victory at the ’83 NCAA Basketball Tournament.
The foundation adopted his motto, “Don´t give up. Don´t ever give up.” The foundation has raised more than $80 million, much of it providing critical early-stage support to novel research. Guided by an advisory board of top physicians and research scientists, the foundation has an excellent track record for finding and funding gifted young scientists and investing in projects with strong potential to yield new treatments and cures. In 2004, the Mass General Cancer Center received a V Foundation grant of $600,000 for translational research and four Cancer Center researchers are among the foundation’s 109 V Scholars, promising young researchers who receive grants of $100,000 to establish their laboratories.
Elene Viscosi, MSN, APRN, BC
Head and neck cancer can involve the face, eyes, mouth, throat and ears. Patients endure complex, aggressive, multidisciplinary treatments as well as psychosocial problems.
Caring for these patients is a true calling for Elene Viscosi. With tireless energy, she has developed a unique skill set to guide and support patients through what may be the most physically and emotionally trying of all cancer therapies.
Elene’s investment in the well-being of her patients is extraordinary and extends well beyond the expected limits of clinical care. She follows patients closely and communicates regularly with family and friends involved in their care. Upon completion of therapy, Elene assists in the patient’s often-difficult transition back into the mainstream of life, family and work. Elene accompanies her patients on their journey through treatment until they are safely home and therapy is but a distant memory.
Robert and Lynn von der Luft
Robert and Lynn von der Luft are major contributors to ovarian cancer research. Their contributions were inspired by the outstanding treatment and care that their daughter, Christa, received at MGH and the expectation that MGH research could lead to early diagnosis of ovarian cancer. No screening test yet exists for ovarian cancer, the fifth-leading cause of cancer death among women in the United States and the most lethal cancer of the female reproductive system.
Christa was diagnosed with stage III ovarian cancer in 2006 shortly after riding in the Pan-Massachusetts Challenge 190 mile bike ride, which raises money for cancer research. At MGH she was expertly and compassionately treated by her surgeon, Marcela G. DelCarmen, MD, MPH, and her oncologist, Carolyn Krasner, MD, along with a host of other medical professionals. Christa’s surgeries and treatments lasted about nine months, which included her proactive participation in promising, innovative clinical trials at MGH. Christa rode in the PMC the two years following her treatment with four other family members. Her picture (right) was taken with a large group of other participating PMC cancer survivors, wearing shirts that say “Living Proof.” She continues to be a powerful speaker and contributor to cancer research as well.
Vivien Weiss, LMHC
“Vivien’s title may be ‘social worker’ but helping people cope with serious illness is her vocation,” says Maria, a member of Vivien Weiss’ ovarian cancer support group at the Cancer Connection in Florence, Mass. The Cancer Connection provides free, professional counseling to patients and caregivers. Vivien also leads a support group for caregivers, a bereavement group, and a workshop for teens whose loved ones have cancer.
“End-of-life issues are hard to talk about,” says a support group member, “but Vivien made it easy. She helped me with these issues so I can spend my joy and energy on living.” Vivien also conducts workshops and private sessions as a volunteer at a free, fourday Ovarian Cancer Survivors Retreat held in spring and fall at Camp Make-A-Dream, near Missoula, Mont.
“Vivien returned with glowing stories about the incredible women she counseled,” says Becky, a colleague. “She has the right blend of compassion, humor and confidence in people’s capacity to cope with very difficult situations. She is much loved by her clients.”
Sam Yoon, MD
At Mass General Cancer Center care is a team effort; but from the start, Dr. Yoon in particular made me feel I’d come to the right place. When I was diagnosed with a rare sarcoma, Dr. Yoon was my first contact as I entered a new and frightening world of aggressive chemotherapy and proton beam radiation. After his careful and straightforward explanation, a feeling of confidence replaced my anxiety. He is totally committed to treating and saving his patients. He doesn’t just treat a patient’s cancer. He treats the patient’s entire being. His expertise and compassionate care saved my life.
Luba Zagachin
I am grateful for the opportunity to study yoga as part of my treatment at the Mass General Cancer Center. I have practiced yoga for more than 25 years; but in the classes led by Luba Zagachin, I learn how to adapt yoga poses to my needs as I go through cancer treatment. She cheerfully encourages her students to go at their own pace and reminds us of the importance of listening to our bodies. She is a teacher’s teacher and treats each student with great empathy and understanding. While training us to be gentle with ourselves in all activities, not only yoga, Luba has also taught us to be positive and respect the learning process within each of us as we recover from illness.
Paul C. Zamecnik, MD
Dr. Paul Zamecnik is a senior scientist at Mass General and the Collis P. Huntington Professor of Oncologic Medicine, Emeritus, at Harvard Medical School. He pioneered the in-vitro synthesis of proteins and helped elucidate how cells generate proteins. He co-discovered transfer RNA, the molecule that decodes the DNA information within a protein, which had been predicted by Francis Crick, the Nobelist who deduced the structure of DNA.
In 1978, Dr. Zamecnik devised a strand of synthetic DNA that blocked the Rous sarcoma virus, which causes cancer in chickens, from copying itself. Since this breakthrough, drug companies have been striving to devise synthetic antisense strands that block genetic signals that cause protein-related diseases before they occur in the cell. The approach holds great promise in the treatment of cancers and many other disorders.
When he received the first-ever Albert Lasker Award for Special Achievement in Medical Science in 1996, Dr. Zamecnik was cited for “brilliant and original science that revolutionized biochemistry and created an entirely new field of scientific inquiry."
Lee Zou, PhD
An assistant professor of Pathology at Harvard Medical School, Dr. Lee Zou is the principal investigator in the Zou Laboratory in the Center for Cancer Research at Mass General. Dr. Zou and his team are studying the mechanisms of DNA repair following injury, such as that caused by radiation or chemotherapy. He has made major breakthroughs in the understanding of how a cell senses lesions in its DNA and initiates a repair pathway — findings that have the potential to advance the effectiveness of both radiology and medical oncology.
The genome is a dynamic and fragile structure that is constantly challenged by DNA damage, DNA replication problems and other forms of cellular stress. Maintenance of genomic integrity is essential for the survival of all organisms. In humans, loss of genomic integrity is closely linked to cancer, developmental defects and aging. The goal of the research by Dr. Lee Zou and his team is to elucidate the fundamental mechanisms by which cells inspect and protect the genome
Susan Zuker
Michael Zuker was positive and loving throughout his four-month ordeal with lung cancer. Soon after Michael’s death in January 2004, his wife Susan founded the Conquer Cancer Coalition of Massachusetts to advance cancer care in his honor.
Susan and her sons Matthew and Jonathan waged a grass-roots campaign to establish the state’s Conquer Cancer license plate. After two years of tireless canvassing, they obtained 1,500 applications, many from people with their own cancer stories. The Zukers presented the applications to the Registry of Motor Vehicles on January 25, 2006, the two-year anniversary of Michael’s death. In August, the plate was officially unveiled at the State House.
On January 25, 2007, the foundation began distributing the funds raised through sales of license plates. Annual grants support the Brigham and Women’s Channing Laboratory and four local cancer care providers.
Due to Susan and her sons’ efforts, thousands of Bay State drivers have the plate, which so far has raised about $250,000 to fight cancer. Jonathan designed its images — an eternal flame with a teardrop, a sunrise, and a boat — evoking his father’s love of fishing
Mary Zwirner, MSW, LICSW, MSN, RN
Social worker Mary Zwirner has counseled brain tumor patients and their families for almost a decade. A brain tumor diagnosis often comes without warning. Many surgical removals are conducted on an emergency basis, allowing patients and families no time for adjustment to an event that will change their lives forever.
Mary is the gifted social worker who provides them with support during these first grueling days. When they first meet Mary, patients and their families are in a state of shock. Mary listens to their fears and concerns with empathy and compassion and then begins answering their questions. In the few days she is with them, Mary reassures and empowers patients and their families with her calm and respectful competence, advocates services on their behalf, and refers them to colleagues who will provide ongoing counseling and care. Mary has earned the respect of all who work with her as well as the gratitude of our patients and families.