Dr. Nicole Danforth: When parents ask, what can I do to help my child at home, we institute a lot of structure, and we encourage parents to be as consistent as they can. You know, we encourage parents to be as clear as they can be and also to anticipate the events of the day for a child. Because for many people with TSC, they tend to be cognitively pretty inflexible, and so shifting sets, going from a to b, so transitioning from playtime to dinnertime, can for instance, be a time when that's quite difficult for a household. And so, we often start with a point of transition with parents, and give them specific ideas. For instance, when the big hand is on the eight is when you're going to stop playing with this toy, and come to the table.
© 2006 The General Hospital Corporation.