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Dr. Nicole Danforth

Nicole Danforth, MD

Dr. Nicole Danforth: For an unaffected sibling of a child with TS, knowledge is the most important piece, and we try hard to educate the sibling. You know, this is where, this is what's going on, and this is what your brother or sister can understand, and this is what they can't understand. And, sort of helping them, you know, you want to walk this fine line between, you don't want them to be a caretaker, but you want them to truly care. And so, one of the most important pieces also for the healthy sibling, of a child with TS, is to you know, parents will often, you know it's benign neglect. But it often tends to be well, that sibling is doing fine. Let's really you know focus our attention on our child that has TS. And it's a quite natural reaction. But we try to remind parents that, you know, the unaffected sibling has his own, his or her own issues possibly with survivor guilt, for instance, they might not be affected. And if they learn this might be a genetic illness, well, am I, why am I not affected? That kind of thing. But also, to enjoy that child's you know, mastery, and enjoy that child's development too. Not that it is better than, it's just different. But that child needs to create and needs to have the space for their own identity as well.