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Dr. Nicole Danforth

Nicole Danforth, MD

Dr. Nicole Danforth: When a parent wants to speak with a child, either about diagnosis, or about treatment, the first piece of the work has to be for the parent to sort of get in touch with their own sense of what's happening, what has happened. We often see parents who are grieving the loss of what they thought their child was going to be. And we often see parents who are really struggling, not out of good, not out or, you know, sort of their wish to do right, but out of really a lack of, of information, and a lack of knowledge. And that's where care providers really need to do their job, and to do it well. To help equip a parent with the idea that you can actually help your child, because it's the parents that are with the child, sort of day to day, in and out. I mean it's very simple for me to sit and meet with a family for two or three hours, and make all kinds of recommendations. But it's really the parents who are on the front lines. And what I say to parents often is, you really have to be now the number one advocate, in a way that I think, for most parents, before they have a child, they couldn't possibly understand.