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Dr. Elizabeth A. Thiele

Elizabeth A. Thiele, MD, PhD

Dr. Elizabeth Thiele: Individuals with tuberous sclerosis complex can basically live forever. They have what we would consider a normal life expectancy, with the exception of those who are severely impaired. So individuals who are non-ambulatory, unable to walk, unable to feed themselves, often those individuals can have a shortened life expectancy, because they're also at risk for significant infections or other disorders. But healthy people with tuberous sclerosis can live to a ripe old age. That being said, it's very important for all individuals with tuberous sclerosis to be closely followed throughout their life, from infancy, early childhood, through adulthood and old age for the possible manifestations of the disorder in order to minimize the effects on their health, and maintain their ability to be healthy and have a normal lifestyle and life span.