Mass General Hospital, Living with TSC
Living with TSC
 Tuberous Sclerosis ComplexHow TSC Affects the BodyComprehensive CareTSC FamiliesInteractive Timeline
Video Index

Medical Care

Dr. Elizabeth Thiele

Neurologist Elizabeth Thiele talks about the importance of integrated care throughout an individual's life. [duration 1:29]
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Genetic Counseling

Dr. Penelope Roberts

Genetic counselor Penelope Roberts explains what families can expect to learn during a genetic counseling session. [duration 4:33]
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Genetic counselor Penelope Roberts explains that when inherited, the severity of TSC's symptoms cannot be predicted. [duration 0:52]
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Research

Neurologist Elizabeth Thiele talks about the advances in science that have led to clinical drug trials for TSC. [duration 0:59]
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Talking about TSC

Dr. Nicole Danforth

Psychiatrist Nicole Danforth discusses the importance of parents preparing to talk with children about TSC. [duration 1:03]
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Dr. Amy Morgan

Neuropsychologist Amy Morgan provides basic information on how parents can talk with their children about TSC. [duration 2:21]
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Support

Psychiatrist Nicole Danforth explains that connecting with others can help TSC families feel less isolated. [duration 0:53]
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Psychiatrist Nicole Danforth explains the importance of educating and nurturing siblings who do not have TSC. [duration 1:12]
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Psychiatrist Nicole Danforth explains that it's important for parents to take time for themselves and each other. [duration 0:30]
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Psychiatrist Nicole Danforth explains that children with TSC benefit from structure and consistency at home. [duration 0:48]
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This content was last reviewed on March 30, 2006.