2013 Chordoma Conferences

On March 21 & 22 the Stephan L Harris Center for Chordoma Care at MGH hosted the Chordoma Foundation’s 2013 Research Workshop followed on March 22-24 by the 2013 Community Conference.

The Research Workshop featured plenary presentations on topics including chordoma genetics and genomics, molecular pathology, model development, preclinical treatment development, clinical research, and treatment advances.

The Chordoma Community Conferences brings together patients, families, researchers and physicians to share progress, exchange ideas and build a network of support for those affected by chordoma, as well as those working to find a cure. The major goal of the conferences are to provide patients and caregivers information to be empowered self-advocates and to understand their very important role in finding more effective treatments and ultimately a cure for this neglected disease.

Presentations from the Research Workshop can be found at: http://www.chordomafoundation.org/research-workshops/2013-icrw-presentations/

Presentations from the Community Conference can be found on the Chordoma Foundation’s web site at: http://www.chordomafoundation.org/community-conference/

Web Sites About Chordoma

The Chordoma Foundation: http://www.chordomafoundation.org

American Academy of Orthopedic Surgeons: http://orthoinfo.aaos.org/topic.cfm?topic=A00084

National Cancer Institute:  http://www.cancer.gov

Cancer Care: http://www.cancercare.org/

Chordoma Survivors Facebook Page: https://www.facebook.com/groups/ChordomaSurvivorsPrivate/


Lodging and Travel Resources

The AstraZeneca Boston Hope Lodge


Hospitality Homes

A housing option for patients undergoing cancer treatment in Boston:http://www.hosp.org/

Corporate Angel Networks

Arranges free flights in open seats on corporate jets: http://www.corpangelnetwork.org/

Patient Airlift Services

Arranges free air transportation based on need to individuals requiring medical care: http://www.palservices.org/

Chordoma Books

Chordormas and Chondrosarcomas of the Skull Base and Spine [Google Books link]

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