Anne Fiore, RN, NP
Massachusetts General Hospital
The Harris Center for Chordoma Care
55 Fruit Street, Yawkey 3B
Boston, MA 02114
John Mullen, MD Surgeon
“Chordoma patients need to be taken care of by a multidisciplinary team experienced in the specialized care of these patients. Few centers of excellence exist where these rare tumors are treated. The initial effort in managing their disease is our best chance at obtaining a positive outcome.”
Anne M. Fiore, NP
Anne Fiore began her nursing career at Mass General Hospital in 1978, specializing in the care of children and adolescents with benign and malignant bone and soft tissue tumors. She began as a staff nurse and held various nursing positions through subsequent years, including Clinical Teacher and Clinical Nurse Specialist. She joined the Department of Orthopaedics, Orthopaedic Oncology Surgery, in 1992. Her passion through the years has been patient education: preparing patients and their families for treatment of their tumors, for surgical management and adjuvant therapy. She has been a consistent source of support for these patients over the past 17 years.
Anne had the privilege of caring for Mr. Stephan Harris. At the time of his diagnosis, management of chordoma was primarily surgery. Now, treatment has dramatically improved, involving a ‘team approach’, all focused on chordoma care, including musculoskeletal pathologists and radiologists, oncology surgeons (ortho, neuro, ENT, general), medical and radiation oncologists, nurse practitioners and nurses specializing in surgical/medical oncology.
Anne was honored to coordinate the first ‘Chordoma Clinic’ in the newly established ‘Stephan l. Harris Center for Chordoma Care’ on April 02, 2009. Watching patients interact with each other and supporting each other gave her great pleasure, since the goal of the Center, according to Mrs. Harris is “to help other people with this disease and to create a place where they know there will be doctors and nurses, as well as other families, who understand what they are going through”.
We all know how supportive the presence of a loved one/family member is to the overall care of a patient. Anne recalls that Mr. Harris was never alone; his wife was by his side at all times. Thus, as part of Mrs. Harris’ major gift to establish the Center for Chordoma Care, she created a fund for patients to assist them with travel and housing expenses. The positive impact this has had on patients and families is overwhelming; there are no words to express their gratitude. This assistance has freed them to focus their energy on treatment and healing.
Anne Fiore’s goal is to work closely with the Chordoma Center Nurse Coordinator, Al Ferreira, to extend the level of expert care available at Mass General to chordoma patients around the world. She will continue to support, educate, coordinate treatment, and manage care of this difficult disease for chordoma patients and their families.
Copyright © 2009 The Massachusetts General Hospital