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The eight family stories presented in these video profiles and essays provide a window into the lives of children with epilepsy and their families. In addition to describing experiences common to most people affected by epilepsy, each story illustrates a particular issue that has been important to that family and that other families affected by epilepsy may encounter. These families have generously chosen to share their personal stories with the hope that doing so might help other families address similar issues. That is our hope as well. To see a video profile and essay about a particular family, select one of the stories below.

 

Michael's Story
Epilepsy's Impact on Learning: Working with Schools

Michael

"He just shows us every day that he's willing to put up the fight to learn. How could we not be just so proud of that?"
Maureen, Michael's mom
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Caroline's Story
Epilepsy and the Family: Impact on Siblings

Caroline

"I think epilepsy affects our whole family because we have feelings that most people don't have about seizures and stuff."
Abigail, Caroline's 11-year-old sister
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Henry's Story
Angelman Syndrome and Severe Epilepsy: Treating the Whole Child

Henry

"You have to look not just at the seizures, but how the child is learning, interacting, and behaving in their world."
Elizabeth Thiele, MD, PhD
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Maya's Story
Diagnosing Epilepsy: Understanding the EEG

Maya

"If the neurologist suggests an EEG, that's the first thing you have to do. The test is very important, and it's a very reliable diagnostic tool."
Jay, Maya's dad
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Evan's Story
Seeking Treatment Options: The Ketogenic Diet

Evan

"The special diet keeps me healthy, and I don't have seizures anymore."
Evan, 9 years old
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Cherinee's Story
Building Self-Esteem and Finding Community

Cherinee

"I wanted to start karate class since Dr. Thiele mentioned it, and now I'm very happy because I'm with friends that have the same problem I do."
Cherinee, 11 years old
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Rose's Story
Low Glycemic Index Treatment: A New Dietary Therapy

Rose

"Counting carbs is hard, but what's really good about the diet is it really takes care of your seizures."
Rose, 14 years old
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Jeanny's Story
Epilepsy's Impact on Learning: Working with Schools

Jeanny

"I feel a little bit nervous, but I really want the surgery. The rest of my life, I might not have seizures anymore. That would be really exciting for me."
Jeanny, 18 years old
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This content was last reviewed on November 20, 2006.