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The following is a list of resources that provide additional educational materials about many important aspects of epilepsy and related disorders. To view a particular category, click on these links:

General

The American Epilepsy Society

http://www.aesnet.org/
The American Epilepsy Society promotes research and education for professionals dedicated to the prevention, treatment, and cure of epilepsy.

Centers for Disease Control and Prevention

http://www.cdc.gov/Epilepsy/
The Centers for Disease Control and Prevention, part of the U.S. Department of Health and Human Services, provides information and resources for individuals and families affected by epilepsy and related disorders.

The Charlie Foundation

http://www.charliefoundation.org/
The Charlie Foundation was established to raise awareness about the ketogenic diet as a treatment for childhood epilepsy.

Epilepsy.com

http://www.epilepsy.com
Epilepsy.com is an educational resource for individuals and families affected by epilepsy.

Epilepsy Foundation

http://www.epilepsyfoundation.org
The Epilepsy Foundation provides education and advocacy for people affected by epilepsy.

Exceptional Parent Magazine

http://www.eparent.com/
Exceptional Parent magazine provides information, support, ideas, encouragement, and outreach for parents and families of children with disabilities and the professionals who work with them.

The Family Village

http://www.familyvillage.wisc.edu/
The Family Village, sponsored by the Waisman Center at the University of Wisconsin, provides thousands of online resources to the families and caretakers of people with cognitive and other disabilities.

The International League Against Epilepsy

http://www.ilae.org/
The International League Against Epilepsy is an association of physicians and other healthcare professionals working to provide the highest quality of care for people with epilepsy.

Local Epilepsy Foundations

http://www.epilepsyfoundation.org/aboutus/ AffiliateLookup.cfm
The Epilepsy Foundation provides a way to search for an epilepsy foundation in your area.

National Institute of Neurological Disorders and Stroke

http://www.ninds.nih.gov/ disorders/ epilepsy/ epilepsy.htm
The National Institute of Neurological Disorders and Stroke, one of the National Institutes of Health, supports research into causes and treatments of neurological disorders and provides information about various disorders, including epilepsy.

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Camps

Epilepsy Camp Roundup

http://www.epilepsyfoundation.org/ epilepsyusa/ camp2006.cfm
The Epilepsy Foundation lists epilepsy camps around the United States.

Karate Program

http://www.clarksselfdefense.com/ needs.htm
The karate program at Clark's Self Defense has helped many children with epilepsy experience the physical challenge and self-discipline that martial arts offer.

Youth Program Central

http://www.youthprogramcentral.com/ camps/ epilepsy.html
Youth Program Central provides a tool designed to help you find epilepsy camps around the country.

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Driving

State Driving Laws

http://www.epilepsyfoundation.org/ answerplace/ Social/ driving/ statedrivinglaws.cfm
The Epilepsy Foundation provides this tool to help you find state driving laws as they relate to epilepsy.

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Sibling Support

Sibling Support Project

http://www.siblingsupport.org/
The Sibling Support Project provides a database of more than 350 sibling groups and programs nationwide. It can also help you locate or start up a sibling group in your area.

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Genetic Disorders and Epilepsy Syndromes

Aicardi Syndrome Foundation

http://www.aicardisyndrome.org
The Aicardi Syndrome Foundation was created to support and provide information to families of children affected by this disorder.

Angelman Syndrome Foundation

http://www.angelman.org
The Angelman Syndrome Foundation provides information and support for individuals with Angelman syndrome and their families.

Doose Syndrome

http://www.doosesyndrome.com
This Web site was created by parents of children with Doose syndrome, also known as myoclonic-astatic epilepsy in childhood (MAE).

Herscot Center for TSC

http://www2.massgeneral.org/tsc/
The Carol and James Herscot Center for Children and Adults with Tuberous Sclerosis Complex provides individualized monitoring and care based on an individual's age and previous medical history.

Living with TSC

http://www2.massgeneral.org/livingwithtsc/
The Living with TSC Web site provides education and support and raises awareness for people affected by tuberous sclerosis complex.

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Learning Issues

The Arc

http://www.thearc.org
The Arc is an international organization for individuals with developmental disabilities.

The Autism Education Network

http://www.autismeducation.net/
The Autism Education Network provides information, resources, and support for families of children with autism spectrum disorders.

Federation for Children with Special Needs

http://www.fcsn.org
The Federation for Children with Special Needs provides information, support, and assistance to parents of children with disabilities.

Individuals with Disabilities Education Improvement Act of 2004 (IDEA)

http://www.ed.gov/policy/speced/ guid/ idea/ idea2004.html
The Individuals with Disabilities Education Improvement Act of 2004 was created to improve educational results for infants, toddlers, children, and youth with disabilities.

Learning Disabilities OnLine

http://www.ldonline.org/
Learning Disabilities OnLine is a resource for parents, teachers, and other professionals who care for or work with people with learning disabilities.

Misunderstood Minds

http://www.pbs.org/misunderstoodminds
Misunderstood Minds is a PBS Web site and video series that provides information about learning disabilities and explores the personal stories of five children who have them.

The National Dissemination Center for Children with Disabilities

http://www.nichcy.org/
The National Dissemination Center for Children with Disabilities provides information on disabilities as they relate to learning and education.

The National Resource Center on AD/HD

http://www.help4adhd.org/
The National Resource Center on AD/HD provides information about the causes of and treatments for children with attention deficit/hyperactivity disorder.

The Office of Special Education and Rehabilitative Services (OSERS)

http://www.ed.gov/about/offices/list/osers/
Part of the U.S. Department of Education, OSERS was created to ensure equal access to quality education for people of all ages with disabilities.

U.S. Department of Education

http://www.ed.gov/parents/needs/ speced/ edpicks.jhtml?src=ln
The U.S. Department of Education has resources for parents of children with special needs.

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Printable PDFs

Parents' View of Henry's Seizure Condition and Prevention Strategies (68k)

Seizure Diary (44k)

Seizure First Aid (72k)

Seizure Journal (72k)

Teaching Students with Epilepsy: Strategies for Educators (68k)

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This content was last reviewed on November 20, 2006.