INTRODUCTION TO THE REGISTRY
There are many women like you who are of childbearing age and take one or more antiepileptic drugs, also known as anticonvulsants. These medications are used to treat epilepsy or other conditions such as pain or mood disorders. Doctors are learning more and more each day about these medications, but there is still much work to be done. Doctors need more information so they can make the right decisions for mother and baby when treating women during pregnancy. The Registry is collecting this information to help find the answers. Every pregnant woman who enrolls with the Registry brings the knowledge one step closer. It's easy to participate - just 3 phone calls - and EVERY woman who enrolls counts!
As of September 2014, there are over 9,545 women enrolled in the Pregnancy Registry. All of these women want to help find the answers. We hope you will too! By enrolling as many pregnant women as possible, the Registry will be able to give doctors a clearer picture of which medications are safest for babies' health.
in the Registry and sharing your experiences, you will be contributing
to a brighter future for mothers and babies. Researchers will be able
to find more answers to the question so many women have; " Is this
medicine safe for my baby?" Your willingness to help the expectant
mothers of tomorrow is greatly appreciated.
If you are
pregnant and are NOT currently taking any of the
following medications, you can enroll in the Registry as a CONTROL
participant by calling TOLL FREE 1-888-233-2334.
Please see INFORMATION
FOR CONTROLS (below) for more information.
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The final component of participation is releasing your medical records from your pregnancy and your baby’s medical records for the first 6 months of life. In order for us to obtain medical records, we will need your signed authorization. We will send the authorization forms to you in the mail after the first and last interviews.
Registry will be calling you to conduct these interviews, it is very
important that you keep us informed if any of your contact information
changes while you are participating in the Registry. If you change your
phone number or address, please call us TOLL FREE 1-888-233-2334
to let us know how to reach you!
A control group can also be called a comparison group. The Registry needs a group of women who are pregnant and are NOT taking anticonvulsant drugs to compare to our group of women who are taking anticonvulsant drugs. This will help us to gather the most accurate data possible for our study.
Who is eligible to participate?
Any woman who is currently pregnant and is NOT taking anticonvulsant medication of any kind is eligible to be a control for the Registry. A control can enroll at any time during pregnancy, but the earlier she enrolls the better!
What do I have to do to participate as a control?
First you should call the Registry TOLL FREE at 1-888-233-2334 to enroll as a control. After you have enrolled, the Registry will take care of the rest! We will call you for 3 quick telephone interviews (two during your pregancy, and one after delivery) that last no more than 10 minutes each. That's it! It's easy and takes very little of your time.
Do I get anything for participating as a control?
Yes. We'd like to thank you for participating as a control by entering you in a raffle drawing for a great prize! If you are chosen as the lucky winner you'll get:
A $400 American Express Gift Card!
The gift card can be used at over a million different businesses in the United States where American Express Cards are accepted. Use it for meals and entertainment, or to purchase items from catalogs, online vendors, or at your favorite store!
The next drawing will take place in May, so be sure to call TOLL FREE 1-888-233-2334 today to enroll as a control.
Tell all your friends about becoming a control! Once you enroll as a control, you'll receive an additional entry in the drawing for each friend who also enrolls as a control! The more of your friends who join in, the more chances you get to win! So call or send out an email to all of your pregnant friends and family across the country and tell them to contact the Registry TOLL FREE at 1-888-233-2334. Make sure you give them the link to this page so they can learn all about the Registry, being a control, and the great prize!
-How you can help
-Medications being studied
-What you need to do
-Information for Controls